New Investigative Therapy for Hereditary Angioedema Found Efficacious in Study

Ionis Pharmaceuticals has just released their findings from a study investigating the effect of IONIS-PKK-LRx and IONIS-PKKRx in hereditary angioedema (HAE) patients with different forms of the disease. These therapies work to reduce…

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Hereditary Angioedema Patients Explain how an Oral Treatment Option Could Change Their Lives
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Hereditary Angioedema Patients Explain how an Oral Treatment Option Could Change Their Lives

Over 2018 and 2019, BioCryst Pharmaceuticals conducted two surveys to better understand the needs and expectations of hereditary angioedema (HAE) patients. Overall, they found that despite progress in HAE therapies,…

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Arabel Spent Quarantine With her Mom and her Paints: An HAE Patient Story
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Arabel Spent Quarantine With her Mom and her Paints: An HAE Patient Story

Arabel Standingbear sketches figures with lead pencils and paints realistic scenes with acrylics. Her poem was accepted by a museum. She has won in local art contests between schools, and…

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May 16th is Hereditary Angioedema Day : Spreading Rare Disease Awareness
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May 16th is Hereditary Angioedema Day : Spreading Rare Disease Awareness

May 16th is celebrated annually as Hereditary Angioedema (HAE) Awareness Day. The event was established with the goal of spreading awareness about this rare condition among both the general public…

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RUCONEST Now Approved for Children with Hereditary Angioedema in Europe

The European Commission has just granted their approval to Pharming for an extended indication of RUCONEST (conestat alfa) for Hereditary Angioedema (HAE). This extension allows the therapy to be utilized for…

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New Study Examines Biomarkers of Hereditary Angioedema not Caused by C1-INH
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New Study Examines Biomarkers of Hereditary Angioedema not Caused by C1-INH

Hereditary Angioedema Hereditary angioedema (HAE) is a rare disease which causes swelling episodes throughout the body, including the airways, gastrointestinal system, and extremities. Most commonly, HAE is caused by a…

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ICYMI: Study Shows Efficacy for New Way to Diagnose Rare Forms of Hereditary Angioedema

Hereditary Angiodema Hereditary angioedema (HAE) is a rare disease typically caused by a SERPING1 gene mutation. This protein is responsible for coding for the protein C1-INH. With improper levels of…

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Study Reveals a More Efficient Approach for Diagnosing Certain Cases of Hereditary Angioedema

According to a story from Angioedema News, a recent study discusses a genetic procedure called allelic discrimination as a method for diagnosing hereditary angioedema. The study concluded that this method…

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UK’s NICE Recommends Coverage for Hereditary Angioedema Drug Takhzyro
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UK’s NICE Recommends Coverage for Hereditary Angioedema Drug Takhzyro

According to a story from Angioedema News, the UK's National Institute for Health and Clinical Excellence (NICE) has officially recommended the drug lanadelumab (marketed as Takhzyro) for coverage under the…

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Trial Demonstrates The Effectiveness of Haegarda in Treating Hereditary Angioedema Attacks
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Trial Demonstrates The Effectiveness of Haegarda in Treating Hereditary Angioedema Attacks

According to a story from Angioedema News, a recent study demonstrated the effectiveness of the medication Haegarda in reducing the number of swelling attacks experienced by hereditary angioedema patients. Preventative…

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The Drug Firazyr is Safe for Older Hereditary Angioedema Patients, Study Finds
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The Drug Firazyr is Safe for Older Hereditary Angioedema Patients, Study Finds

According to a story from Angioedema News, a recent study has found that the drug icatibant (marketed as Firazyr) can safely treat older patients with hereditary angioedema, a rare condition…

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