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Daily Archives: December 24, 2015

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Doctors Look to Super Heroes to Help Child Fighting Dystonia

Doctors Look to Super Heroes to Help Child Fighting Dystonia

  • Post author:Winnie Nash
  • Post published:December 24, 2015
  • Post category:Dystonia/Rare Disease

Matthew Merryman, a seven-year-old boy battling a rare form of brain cancer, is a fighter. Point blank. In an article recently posted by The Frederick News-Post out of Frederick, Md.,…

Continue Reading Doctors Look to Super Heroes to Help Child Fighting Dystonia
3 Simple Ways You Can Treat Your POTS Symptoms

3 Simple Ways You Can Treat Your POTS Symptoms

  • Post author:Winnie Nash
  • Post published:December 24, 2015
  • Post category:Dysautonomia/POTS

Postural Orthostatic Tachycardia Syndrome. It’s one of those diseases that doesn’t get much attention, but still affects hundreds of thousands of people in America alone. Also known as POTS, the disease…

Continue Reading 3 Simple Ways You Can Treat Your POTS Symptoms
2016 Miami Marathon | Cystic Fibrosis Lifestyle Foundation

2016 Miami Marathon | Cystic Fibrosis Lifestyle Foundation

  • Post author:C Garcia
  • Post published:December 24, 2015
  • Post category:Cystic Fibrosis/Rare Disease

Are you planning on being in Miami, Florida, on January 26, 2016? YOU ARE?!! That's great! You can join the Cystic Fibrosis Lifestyle Foundation (CFLF) and the Miami Marathon 2016 for…

Continue Reading 2016 Miami Marathon | Cystic Fibrosis Lifestyle Foundation
How to Get Delicious Breakfast AND Support the Cystic Fibrosis Foundation

How to Get Delicious Breakfast AND Support the Cystic Fibrosis Foundation

  • Post author:C Garcia
  • Post published:December 24, 2015
  • Post category:Cystic Fibrosis/Rare Disease

Hello Pittsburgh! The Cystic Fibrosis Foundation is joining the New Balance Marathon Training team on three separate days as they train for the Pittsburgh Marathon. So, if you have a mind to…

Continue Reading How to Get Delicious Breakfast AND Support the Cystic Fibrosis Foundation
Turning Insult Into Dystonia Awareness

Turning Insult Into Dystonia Awareness

  • Post author:Tom Seaman
  • Post published:December 24, 2015
  • Post category:Dystonia/Rare Disease

When my dystonia was severe, my neck was turned and locked towards my right shoulder. Most people would look and not say anything. Then there were some who looked and…

Continue Reading Turning Insult Into Dystonia Awareness

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