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Daily Archives: December 30, 2015

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Can Statins Save Your Life? Find Out Here

Can Statins Save Your Life? Find Out Here

  • Post author:Lady Kehveen Abernathy
  • Post published:December 30, 2015
  • Post category:Duchenne Muscular Dystrophy/Rare Disease

Duchenne muscular dystrophy (DMD) may not sound so bad, but it is. What's so fatal about muscle degeneration? you might ask. Well, the heart is a muscle, so there's that. Luckily,…

Continue Reading Can Statins Save Your Life? Find Out Here
Undiagnosed Disease Kills Mom; Decades Later, Son’s Search Continues

Undiagnosed Disease Kills Mom; Decades Later, Son’s Search Continues

  • Post author:James Ernest Cassady
  • Post published:December 30, 2015
  • Post category:HAE/Rare Disease

Andy Long's mom was sick all her life. She passed away in 1969 at the age of 24. Andy, just 5 years old, was sent to live with his paternal…

Continue Reading Undiagnosed Disease Kills Mom; Decades Later, Son’s Search Continues
How to Type a 90,000 Word Novel with One Hand

How to Type a 90,000 Word Novel with One Hand

  • Post author:Winnie Nash
  • Post published:December 30, 2015
  • Post category:Dystonia/Rare Disease

Writing 90,000 words is no cake walk for anybody, but Liz Nugent, a top author in the United Kingdom, made it happen despite the challenges that she faces as a…

Continue Reading How to Type a 90,000 Word Novel with One Hand
#NewYearNewYou Dysautonomia Health Goals in 2016 Part 2

#NewYearNewYou Dysautonomia Health Goals in 2016 Part 2

  • Post author:Patient Worthy Contributor
  • Post published:December 30, 2015
  • Post category:Dysautonomia/POTS

To read part 1 of Laurie's #NewYearNewYou goals, click here. I recently became a state chapter leader for the Dysautonomia Support Network. I love it and it's really helped me…

Continue Reading #NewYearNewYou Dysautonomia Health Goals in 2016 Part 2
Cystic Fibrosis Dancer Glides Through Life With Grace

Cystic Fibrosis Dancer Glides Through Life With Grace

  • Post author:Winnie Nash
  • Post published:December 30, 2015
  • Post category:Cystic Fibrosis/Rare Disease

  Lady Gaga was onto something when she penned the lyrics “just dance; it’ll be okay.” Becca Friedman has been dancing her whole life, and despite her life-threatening cystic fibrosis…

Continue Reading Cystic Fibrosis Dancer Glides Through Life With Grace

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