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Daily Archives: January 12, 2016

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4 Memes to Help You Kick Butt in Cystic Fibrosis Awareness

4 Memes to Help You Kick Butt in Cystic Fibrosis Awareness

  • Post author:Rebekah
  • Post published:January 12, 2016
  • Post category:Cystic Fibrosis/Rare Disease

We are happy to say that through our partnership with CysticLife.org and our awesome readers like yourself, Patient Worthy was able to hit one of it's New Year's Resolutions already....…

Continue Reading 4 Memes to Help You Kick Butt in Cystic Fibrosis Awareness
This New Finding Spits at the Heart of Heart Failure
Possibly link found between narcolepsy and heart failure.

This New Finding Spits at the Heart of Heart Failure

  • Post author:Erica Zahn
  • Post published:January 12, 2016
  • Post category:Narcolepsy/Rare Disease

Researchers at Stanford University School of Medicine have discovered a gene that could possibly reduce the risk of cardiac issues, like heart failure. What's weird... it's the same gene, when mutated, that was…

Continue Reading This New Finding Spits at the Heart of Heart Failure
How To’s and More Tips On Making Your Child’s Injections Painless

How To’s and More Tips On Making Your Child’s Injections Painless

  • Post author:Erica Zahn
  • Post published:January 12, 2016
  • Post category:CAPS/FCAS/Neonatal onset multisystem inflammatory disease/Rare Disease

Treatments for autoinflammatory diseases commonly require a patient to receive injections under the skin, which can be tricky if you are the parent of a small child (or large husband) who…

Continue Reading How To’s and More Tips On Making Your Child’s Injections Painless
How America’s Opioid Obsession Is Hurting Vets With AS
Veterans also need proper medical attention.

How America’s Opioid Obsession Is Hurting Vets With AS

  • Post author:James Ernest Cassady
  • Post published:January 12, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

Michael Needham is a Vietnam veteran who served in the Navy before being discharged as a result of his ankylosing spondylitis (AS). In order to live with the pain of his…

Continue Reading How America’s Opioid Obsession Is Hurting Vets With AS
7 Bizarre Ways You Know You Have POTS

7 Bizarre Ways You Know You Have POTS

  • Post author:Patient Worthy Contributor
  • Post published:January 12, 2016
  • Post category:Dysautonomia/Lyme Disease/POTS

Before I was officially diagnosed with Postural Orthostatic Tachyardia (POTS), I just thought these weird symptoms were a part of me. People would make comments and I would respond with…

Continue Reading 7 Bizarre Ways You Know You Have POTS
Céline Dion Be Bangin’ for Cystic Fibrosis

Céline Dion Be Bangin’ for Cystic Fibrosis

  • Post author:Winnie Nash
  • Post published:January 12, 2016
  • Post category:Cystic Fibrosis

Céline Dion. More than just a pretty face. More than just a bangin’ singer. And more than just a popular worldwide celebrity. Celine Dion in fact, is a philanthropist through…

Continue Reading Céline Dion Be Bangin’ for Cystic Fibrosis

Featured


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Why Your Voice in Research Matters: Groundbreaking Studies are Changing What's Possible


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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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