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Daily Archives: March 21, 2016

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Get Inside the Mind of a Narcoleptic 20-something

Get Inside the Mind of a Narcoleptic 20-something

  • Post author:James Ernest Cassady
  • Post published:March 21, 2016
  • Post category:Narcolepsy/Rare Disease

"Paralysis" "Convulsions" "Bizarre" "Frightening" "Anxiety" "Depression" These are just a few of the words you'll find on this narcolepsy infographic, posted by Tumblr user needlenightnemesis. If you don't live with…

Continue Reading Get Inside the Mind of a Narcoleptic 20-something
How to Detox From Chronic Lyme Treatment

How to Detox From Chronic Lyme Treatment

  • Post author:Patient Worthy Contributor
  • Post published:March 21, 2016
  • Post category:Rare Disease

Feeling crappy because of Lyme is the WORST. Then, feeling crappy from Lyme TREATMENT is scary. You think you know your Lyme, but then BAM! Treatment gives you random symptoms, from…

Continue Reading How to Detox From Chronic Lyme Treatment
$3 Billion in Wasted Cancer Meds: Who’s to Blame?

$3 Billion in Wasted Cancer Meds: Who’s to Blame?

  • Post author:Patient Worthy Contributor
  • Post published:March 21, 2016
  • Post category:Rare Disease

When my cat isn't distracting me with his exotic dance routine (he's just trying to get through catnip tasting school okay!? don't judge!) I do research on subjects that help…

Continue Reading $3 Billion in Wasted Cancer Meds: Who’s to Blame?
5 Ways to Exercise With Lyme Disease

5 Ways to Exercise With Lyme Disease

  • Post author:Patient Worthy Contributor
  • Post published:March 21, 2016
  • Post category:Lyme Disease

If you have chronic Lyme like me, then you know that exercising can be a huge challenge. Your joints might hurt or swell, you might even find it difficult to…

Continue Reading 5 Ways to Exercise With Lyme Disease
Amazing Boy Unites Community To Fight Aplastic Anemia

Amazing Boy Unites Community To Fight Aplastic Anemia

  • Post author:James Ernest Cassady
  • Post published:March 21, 2016
  • Post category:Aplastic anemia/Rare Disease

I've got to give a HUGE shout out to the folks at Larson Heights Elementary in Moses Lake, Washington! One of their students, Michael Owen, was diagnosed with aplastic anemia…

Continue Reading Amazing Boy Unites Community To Fight Aplastic Anemia
Meme Monday – Focus on Positivism When Managing Your Rare Disease

Meme Monday – Focus on Positivism When Managing Your Rare Disease

  • Post author:Patient Worthy Contributor
  • Post published:March 21, 2016
  • Post category:Rare Disease

The following memes focus on keeping your happiness and badassery levels high! No matter what your struggles, whether it be dealing with a rare disease or fighting to create awareness…

Continue Reading Meme Monday – Focus on Positivism When Managing Your Rare Disease

¿Qué le dirías a este individuo con fibrosis quística?

  • Post author:Patient Worthy Contributor
  • Post published:March 21, 2016
  • Post category:Cystic Fibrosis/Rare Disease

En el sitio web fabuloso de Cystic Fibrosis Lifestyle Foundation, el blogger de FQ  Brian Callanan ha emitido una llamada a la acción. Él quiere saber de todos ustedes si…

Continue Reading ¿Qué le dirías a este individuo con fibrosis quística?

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