Have You Heard About the New Treatment for VWD?

Von Willebrand disease, or VWD, affects about 1% of the American population, but until recently, there was no dedicated therapy to treat it.

If you’re unfamiliar with this rare disease, VWD is a bleeding disorder similar to hemophilia.

Von Willebrand disease is a bleeding disease similar to hemophilia. Luckily, it only affects about one-percent of the US population. Source: http://kidshealth.org

Patients have frequent nose bleeds, bruise easily, and suffer from heavy bleeding after some routine surgical procedures, like having a tooth extracted. Women with VWD can suffer from excessively heavy menstrual periods.

This diagram shows you how blood normally clots compared to the way it “clots” in people with von Willebrand. Source: http://www.rchsd.org/

Recently, the FDA approved Vonvendi® [Von Willebrand factor (Recombinant)], a Baxalta product. Clinical trials confirmed Vonvendi is safe for on-demand treatment of bleeding episodes and is effective in controlling bleeds from different areas of the body. It’s indicated for patients 18 years of age or older.


Do you have von Willebrand disease? Share your treatment experiences with the PatientWorthy community!

Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

Share this post

Follow us