This 13-Year-Old Girl Will Make You Rethink CVID

Amber Blair, a brave 13-year-old girl from Chowchilla, California, was born with common variable immune deficiency (CVID), but she wasn’t properly diagnosed until years later, according to Chowchilla News.

She suffered from recurring infections over the course of her life, and doctors could never seem to pinpoint the cause. Amber suffered from a host of different issues, including ear infections, joint pain, sinus problems, and skin rashes. Her vision was negatively affected, and she had frequent headaches.

CVID is a condition where the body doesn’t produce sufficient antibodies to fight infections and serious diseases.

Amber got weaker and weaker, and when she developed a persistent case of pneumonia and ended up in the hospital, she was seen by an immunologist who was able to finally diagnose her correctly. The doctor placed her on immunoglobulin replacement therapy.

While the infusion process was uncomfortable, Amber held on to the hope that she would start feeling better. It took quite a while, but she has responded to the treatment.

Amber has a straight-A average at school and loves music. She shares that love with hundreds of people when she performs the National Anthem at local events. Amber has been singing since she was five-years-old!

She is determined to not let CVID limit the goals she’s set for herself, including one day joining the United States Air Force.

Does Amber’s story give YOU hope? Start a conversation in a comment box below!

Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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