How To Have “Wild” Nights With Behçet’s Disease

When you have a chronic illness, “wild” nights tend to become a thing of the past. No more late nights at the club, hanging out until midnight in the middle of the week, or ignoring any concept of a bedtime…

To say it takes time to adjust to living with a chronic illness, like Behçet’s, is an understatement. But eventually, you do, and sometimes you can even view those changes with a sense of humor.

So, here’s my take on a typical week of “wild” living with Behçet’s disease, but really, it could apply to many rare diseases.

Stock-Up Sunday

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Honestly, I wish I looked that cute in the kitchen. Source: Giphy

Meal prepping and planning what you’re wearing this week because THIS IS THE WEEK you’re going to put that disease in its place!

Malaise Monday

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I don’t think you understand how much energy it takes to lift up the remote… Source: Giphy

Sprawling on the couch after work, marathoning a reality show you don’t really like because you’re exhausted and the remote is just too far away. Besides, who feels good on a Monday, anyway?

Turned Up Tuesday

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I’ll have you know, cereal is the best dinner! Source: Giphy

Turning up your nose at the healthy meal you laboriously prepared on Sunday because the nausea’s saying, “Not a chance in hell!” and eating cereal instead… like an adult!

Wiped Out Wednesday

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No, but seriously…Why can’t my couch be my bed? Source: Giphy

Falling asleep on the floor at 9PM because your bed is too far away and you just can’t even fathom that you have to get through two more days of work…

Throwback Thursday

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Seriously? Source: Giphy

Throwing back pills because you just want your body to stop killing you- literally- and getting a notification that you’ve been tagged in a photo of you and your friends having a blast–before you got sick and they disappeared.  Just rub some salt into that wound, “friend.”

Friday Flare Day

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Friday Flare Day! Party of me. Source: Giphy

“Going out to the club?” HAHAHA… Only if that club is my bed and the guest list is me!

Social-ish Saturday

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Saturday morning is too early! Source: Giphy

After spending the entire day dozing, you almost have enough energy to meet up with friends. At least you know the night will be cheap because you can’t really drink with all the meds you’re on!

Farrah Fontaine

Farrah Fontaine

As a child, Farrah Fontaine always knew she wasn't normal. Part of her family descends from the ancient Silk Road, which made her stand out in the Great White North. That's why she wants to give voice to the voiceless so they know they're not alone.

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