Let’s Hear It For The #Raredads
If you know or are a rare dad who is the parent of a child with a rare disease, or are a rare dad who has a rare disease, tell your story! Shed…
Continue Reading
Let’s Hear It For The #Raredads
Pixabay
What Can You Do About High Cortisol levels?
Living with Cushing's Disease: How Healthy Eating and Exercise Will Help Cushing's disease is a condition that occurs when there is a high amount of cortisol in your blood. This level…
Continue Reading
What Can You Do About High Cortisol levels?
Practical Info About PI Disorders
There are 250+ PI Disorders Out There Primary immunodeficiency disorders were once shrouded in misinformation and a general lack of understanding. Many would argue that this is still true today…
Continue Reading
Practical Info About PI Disorders
How to Explain Your Rare Disease to a New Doctor
Doctors are trained to look for horses instead of zebras. You may have to inform them that zebras do indeed exist. Sometimes it seems like you are explaining yourself and Behcet's…
Continue Reading
How to Explain Your Rare Disease to a New Doctor
Myasthenia Gravis: What You need to Know
Myasthenia gravis is an autoimmune disease of the neuromuscular system, causing muscle weakness in the voluntary muscles of your body. While the causes of myasthenia gravis aren't always understood, it is…
Continue Reading
Myasthenia Gravis: What You need to Know
How To Have “Wild” Nights With Behçet’s Disease
When you have a chronic illness, "wild" nights tend to become a thing of the past. No more late nights at the club, hanging out until midnight in the middle…
Continue Reading
How To Have “Wild” Nights With Behçet’s Disease
bebés diminutos y la espondilitis anquilosante: un estudio en la UE
La espondilitis anquilosante (A. S. por sus siglas en ingles) es una forma de artritis que afecta a la columna, aunque otras articulaciones pueden participar. Que causa inflamación de las…
Continue Reading
bebés diminutos y la espondilitis anquilosante: un estudio en la UE
