How to Find a Support Community When You Have IPF

Whether you’ve just been diagnosed with IPF, or you’ve been living with the diagnosis for a while now, there’s one website location that you should get to know: The Pulmonary Fibrosis Foundation’s (PFF) Event page.

From support, to education and awareness, to fundraising, there are opportunities around the world for people with IPF and their care partners to share experiences and support.

And if you don’t see an event that meets your needs, you could become a “Team PFF Leader” and create your own. The organization offers guidelines, ideas, and encouragement.

There’s even a “Welcome Kit” to help you get started.

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So don’t face IPF alone—reach out and connect with a welcoming and supportive community.

Is there an IPF event near you? Tell us about it in the Comments section, below!



EmpatheticBadass is a young-at-heart writer from Ohio (Go, Bobcats & The Marching 110!)) who is passionate about being a voice for the patient perspective.

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