Nicole Tardiff-Brooks just wants to be a mom to Colin, her sweet 4-year-old son. But Nicole has several diseases--lupus, Sjogren's disease, and severe neurological and liver damage. Colin knows Mommy is sick,…
That should be easy right? Unfortunately for some, like those with IPF, it is not that simple. Their lungs produce scar tissue that prevents the body from getting the oxygen…
Chiasma is conducting another clinical trial for Acromegaly patients, the MPOWERED study. “It is designed to compare the safety and effectiveness of an investigational new drug product, octreotide capsules, to…
Take things one day at a time. Know that the going isn't always easy and the path isn't always smooth. Your journey with your health is exactly that, a journey,…
I love my mom. She's on Facebook, obviously. Since I got sick, she's always sharing the latest Lyme news (obviously). She's the best and incredibly supportive of a disease that some…
Whether you’ve just been diagnosed with IPF, or you’ve been living with the diagnosis for a while now, there’s one website location that you should get to know: The Pulmonary…
1. Las enfermedades raras tienden a venir con nombres largos y difíciles. Para las muchas personas que no están familiarizados con ellos, pueden ser un bocado y puede que tenga…
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