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Daily Archives: August 3, 2016

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When PD Makes You Crazy, Swallow THIS

When PD Makes You Crazy, Swallow THIS

  • Post author:PW Blogger
  • Post published:August 3, 2016
  • Post category:Parkinson's Disease/Rare Disease

When people hear the word “Parkinson’s disease” (PD), they are likely to conjure an image of trembling and unsteady gait. But Parkinson’s disease has many manifestations that strike individuals unequally…

Continue Reading When PD Makes You Crazy, Swallow THIS
Now is the Best Time in History to Be Born Early!

Now is the Best Time in History to Be Born Early!

  • Post author:Erica Zahn
  • Post published:August 3, 2016
  • Post category:neonatal respiratory distress syndrome/Rare Disease

Fifty years ago, a baby born at 22 weeks didn't have a very significant chance for survival. It wasn't until the early 1970s that specialized equipment was developed to take…

Continue Reading Now is the Best Time in History to Be Born Early!
Breathing Should Be The Easy Part. #IPF

Breathing Should Be The Easy Part. #IPF

  • Post author:Kristen Lord
  • Post published:August 3, 2016
  • Post category:IPF/Rare Disease

Life is hard, Breathing should be the easy part. Breathing should be the easiest thing to do in life. It is an automatic body function that we do without thought.…

Continue Reading Breathing Should Be The Easy Part. #IPF
See What Simple Joy They Gave One Little Lennox-Gastaut Boy

See What Simple Joy They Gave One Little Lennox-Gastaut Boy

  • Post author:PW Blogger
  • Post published:August 3, 2016
  • Post category:Lennox-Gastaut syndrome/Rare Disease

Like most little boys, six-year-old Maddox Klossner loves being outside and in constant motion. Maddox has cerebral palsy as well as a form of epilepsy called Lennox-Gastaut Syndrome; both conditions were…

Continue Reading See What Simple Joy They Gave One Little Lennox-Gastaut Boy
5 Things People With Narcolepsy Are Tired of Hearing
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5 Things People With Narcolepsy Are Tired of Hearing

  • Post author:Winnie Nash
  • Post published:August 3, 2016
  • Post category:Narcolepsy/Rare Disease

To all the people with narcolepsy out there: how tired are you of having people make light of your condition? The jokes, the playfulness, the jabs—it all gets a little…

Continue Reading 5 Things People With Narcolepsy Are Tired of Hearing
asi es como se siente ver a la ICV fijamente a los ojos y darle un rodillazo en la ingle

asi es como se siente ver a la ICV fijamente a los ojos y darle un rodillazo en la ingle

  • Post author:Patient Worthy Contributor
  • Post published:August 3, 2016
  • Post category:CVID/Rare Disease

Cualquier persona diagnosticada con una enfermedad crónica tiene dos opciones. Opción 1: Vive la vida sin hacer nada y esperar a que llegue el final O Opción 2: Aprender lo…

Continue Reading asi es como se siente ver a la ICV fijamente a los ojos y darle un rodillazo en la ingle

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