I’m continuing on my long flight to Brazil, AKA, “Zikaland”—in my opinion, (BTW, I do LOVE Brazilians, I just HATE what’s happening). I’m wondering if Brazil is one of the…
Listen up. This is important for the aplastic anemia community—especially for children who’ve been diagnosed with this serious condition. The Dana-Farber Children’s Cancer and Blood Disorders Hospital in Boston, MA…
Every now and then, I read a story that reminds me of the power of perseverance and a families love. "Mom, it's too late. I'm dying" is one of those stories. From the…
Sometimes when a person has to fight the daily battles with chronic disease, some things just don't seem as important as others. Occasionally, patients with chronic disease are understandably focused…
I have to admit that I had tunnel vision when it comes to patient advocacy. I naively thought that everyone was direct and honest with their doctors. I believed that…
Hello I’m Kara, a woman who was finally, properly diagnosed 10 years ago with acromegaly. I still deal with residual issues that started 20 years ago on a daily basis. …
For anyone who watched the television show "Law and Order," we all know that whatever the case, all the details were always wrapped up in under an hour. Prosecution. Check. Defense. Check.…
¿Quién sabía que el colonialismo podría ser una de las principales causas de las enfermedades raras ?! Al menos, ese es el caso de muchos quebequenses. La tirosinemia, que afecta…
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