Welcome back to Editor’s Choice Patient Worthians!
This week we have a story on some awesome rockers that are helping out the POTS community. We also have a sweet TEDx talk on ankylosing spondylitis.
We also have an eye-opening post about narcolepsy and information on Non-24 Hour Sleep-Wake Disorder.
So sit back and enjoy this week’s Editor’s Choice!
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Rockers Stirred Up the POTS Benefit for South Carolina Teen
This musician dad is doing something BIG for his daughter suffering from POTS.
Check out the story here.
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You Should Read This Woman’s Narcolepsy Confessions
PW writer Erica Zahn details her conversation with a woman suffering from narcolepsy.
Read here to become enlightened!
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AS: Living with Invisible Illness, a TEDx Talk
PW friend and ankylosing spondylitis warrior Charis is always trying to better the rare disease community.
Watch what she has to say during her TEDx talk here.
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Midnight in the Garden of Non-24 Sleep-Wake Disorder: How Much Do You Know?
When I first read the name “Non-24 Hour Sleep-Wake Disorder,” I immediately felt like that name could be shorter… and also I had no idea what it was.
Find out about this rare disease and it’s tremendous challenges to support awareness and understanding!
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