My Life with Rare Chronic Illnesses
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My Life with Rare Chronic Illnesses

Hello, my name is Megan. I have been diagnosed with postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS), mast cell activation syndrome (MCAS), small fiber neuropathy (SFN), eosinophilic esophagitis (EOE),…

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A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 1)
Photo courtesy of Pari Schroeder

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 1)

When asked about the key way that the medical field can better serve patients, Pari Schroeder doesn’t waver: multidisciplinary care. She acknowledges that the medical system can often be very…

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Compassion Corner: Your Illness is Real: How to be Seen, Heard, and Treated with Compassion
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Compassion Corner: Your Illness is Real: How to be Seen, Heard, and Treated with Compassion

Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

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Research On COVID-19 Could Help Chronic Fatigue Syndrome Patients
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Research On COVID-19 Could Help Chronic Fatigue Syndrome Patients

We know that COVID-19 leaves some with long-lasting symptoms. In fact, we are beginning to discover the connection between the respiratory virus and chronic fatigue syndrome (CFS). Now, CFS patients…

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COVID-19 Long Haulers are Now Being Diagnosed With Conditions like POTS and CFS

It's no secret that COVID-19 can cause lingering symptoms, some of which persist for months. In fact, there is a name for those who deal with the lasting symptoms of…

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Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Dysautonomia May Have Treatable Underlying Autoimmune Disease
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Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Dysautonomia May Have Treatable Underlying Autoimmune Disease

by Lauren Taylor from In The Cloud Copy Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complicated and debilitating condition in which affected individuals are unable to perform their daily activities…

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The ADA is 30 Years Old. What Does it Mean to Young People with Disabilities?
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The ADA is 30 Years Old. What Does it Mean to Young People with Disabilities?

According to a story from Youth Today, the Americans with Disabilities Act (ADA) was first passed 30 years ago, in 1990. This historic law helps protect people that live with…

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Let’s Talk Spoonies and Compression Socks!
Compression socks come in all different styles and patterns so even though this image is from a stock website, we have no way of knowing these guys AREN'T wearing compression socks.

Let’s Talk Spoonies and Compression Socks!

I've been hearing people buzz about compression socks/stockings for a while, but I've never invested in a pair myself. They're basically what they sound like-- socks or stockings that... compress.…

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Postural Orthostatic Tachycardia Syndrome (POTS): An Underdiagnosed Condition That Doctors Said Was All in Her Head

About one to three million people in the United States are living with postural orthostatic tachycardia syndrome (POTS). The disease affects one in one hundred teens and is more common…

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