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Daily Archives: February 13, 2017

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Unlikely, Innovative Cure for Bronchopulmonary Dysplasia

Unlikely, Innovative Cure for Bronchopulmonary Dysplasia

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:Amyloidosis/Bronchopulmonary Dysplasia/Rare Disease

While discussing stem cells can immediately polarize a conversation, the promise they offer could silence the critics. The ability of stem cells to become other types of cells is well…

Continue Reading Unlikely, Innovative Cure for Bronchopulmonary Dysplasia
Exercise and IPF: What You Can and Can’t Do
Source: pixabay.com

Exercise and IPF: What You Can and Can’t Do

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:Idiopathic Pulmonary Fibrosis/IPF/Rare Disease

One of the biggest misconceptions around idiopathic pulmonary fibrosis is that once you get the diagnosis, exercise is off the table and there is nothing that you can do to…

Continue Reading Exercise and IPF: What You Can and Can’t Do
Everything You Need to Know About HAE
Source: pixabay.com

Everything You Need to Know About HAE

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:HAE/Rare Disease

Close your eyes. Now imagine what it would be like to have a hand swell to two, three, or four times as large as it normally is. It could happen…

Continue Reading Everything You Need to Know About HAE
How the World of Parkinson’s Research is Changing
Source: www.pixabay.com

How the World of Parkinson’s Research is Changing

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:Parkinson's Disease

As the New Year begins, we are all filled with hope of what 2017 will bring. For people with a rare and confusing disease, scientists and researchers are hopeful that…

Continue Reading How the World of Parkinson’s Research is Changing
FDA Approves New Drug for Children and Adults with SMA
[Source: pixabay.com]

FDA Approves New Drug for Children and Adults with SMA

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:Rare Disease/Spinal Muscular Atrophy/Timely

The first medication to combat spinal muscular atrophy (SMA) has recently been approved by the United States Food and Drug Administration. It is approved for use by children as well…

Continue Reading FDA Approves New Drug for Children and Adults with SMA
Roll Out the Red Carpet! Preteen Battling Sickle Cell Anemia Goes to the Grammy Awards
source: pixabay.com

Roll Out the Red Carpet! Preteen Battling Sickle Cell Anemia Goes to the Grammy Awards

  • Post author:Nia
  • Post published:February 13, 2017
  • Post category:Rare Disease/Sickle cell anemia

12-year-old Sarah Stone has had sickle cell anemia for as long as she can remember. She experiences a lot of pain, takes lots of medicines and has had many surgeries.…

Continue Reading Roll Out the Red Carpet! Preteen Battling Sickle Cell Anemia Goes to the Grammy Awards
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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