An 8-year-old child in Fresno, California is receiving an FDA approved miracle drug that will possibly lengthen her life.
Hayden Calafiore is the first to receive the injection as a child that will treat spinal muscular atrophy (SMA). She is also the first to receive the drug in the United States. This young child has been living with SMA for half of her short life.
Currently she cannot talk, walk, or breathe without help due to spinal muscular atrophy.
Spinraza was approved by the FDA to treat spinal muscular atrophy. Calafiore will receive the first four initial shots and then three shots each year after that. Ideally, she’ll be taking this drug for the rest of her life. There is not a 100% chance of the medicine extending her life, but Hayden’s family and doctors have faith that the medicine will work.
Never Give Up!
Click here for more information on this inspirational SMA story.