Happy Friday Patient Worthians!
This week we have two awesome contributions. One addresses grieving as a parent of a child with rare disease. Another addresses living with CRPS and other rare diseases while in high school.
We also have an incredibly inspiring interview with an 11-year mesothelioma survivor. Lastly, we have details on an upcoming Cystinosis Research Network event!
We hope you are as excited as we are to check out this week’s Editor’s Choice![one_half]
PW Contributor Denise is a rare mom with a child battling chronic illness.
Read her experience here.[/one_half_last] [one_half]
PW Contributor Karen is in high school. As if this environment isn’t harsh enough, she’s battling multiple rare disorders.
Check out her journey here.[/one_half_last] [one_half]
We had the pleasure of talking to Heather about her advocacy work for mesothelioma.
Read about her rare disease journey and how she is giving back.[/one_half_last] [one_half]
Mark your calendars for this cystinosis event you won’t want to miss!
Check out the details here.[/one_half_last] [one_half]