Juvenile Arthritis Meets its Match in Preteen Gymnast Katie Chipman
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Juvenile Arthritis Meets its Match in Preteen Gymnast Katie Chipman

We've all seen them - gymnasts jumping high, twirling low, and bending their bodies in ways most of us never thought possible! And if you think about it, gymnastics in…

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Bullied Video Gamer with Rare Disease Levels Up, Thanks to the Internet
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Bullied Video Gamer with Rare Disease Levels Up, Thanks to the Internet

The Internet can be a brutal place, thanks to anonymous bullying. But the Internet can also be a place of redemption, thanks to anonymous do-gooders! Case in point: According to…

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An IPF Diagnosis Before 30: It Doesn’t Just Affect Older Adults
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An IPF Diagnosis Before 30: It Doesn’t Just Affect Older Adults

Idiopathic Pulmonary Fibrosis (IPF) most commonly affects aging adults, but for columnist Charlene Marshall, the disease struck in her late 20s. A diagnosis in and of itself is shocking, but…

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The Progeria Research Foundation is Working Harder Than Ever
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The Progeria Research Foundation is Working Harder Than Ever

Earlier last month, the second clinical trial for progeria was announced as completed. The trial was again funded by The Progeria Research Foundation, spearheaded by Drs. Scott Berns and Leslie…

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Cure SMA Produces a Booklet on Insurance Coverage to Help You
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Cure SMA Produces a Booklet on Insurance Coverage to Help You

Some good news for patients with Spinal Muscular Atrophy (SMA) and their families! There's a new booklet out with detailed information on how to navigate the increasingly complex health insurance…

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Scientists Achieve Major Breakthrough in Alzheimer’s Research
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Scientists Achieve Major Breakthrough in Alzheimer’s Research

As reported in Nature (an international medical publication), research scientists have uncovered the atomic makeup of an important protein found in those with Alzheimer's Disease. This is being touted as a…

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Cystic Fibrosis Community Wins Big as Vertex, Irish Government Agree on Prices
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Cystic Fibrosis Community Wins Big as Vertex, Irish Government Agree on Prices

Regular readers of Patient Worthy know the cost of drugs is a huge barrier to treatment for many patients and families. Additionally, the fewer people diagnosed with a condition, the…

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