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Daily Archives: July 25, 2017

Home » Archives for July 25, 2017
The Clot Thickens: Athletes Underscore Reasons for DVT Awareness
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The Clot Thickens: Athletes Underscore Reasons for DVT Awareness

  • Post author:Minden Cantrell
  • Post published:July 25, 2017
  • Post category:Protein C deficiency

As a young woman, my friend Ruth Williams might have been concerned about getting breast cancer, but she never considered the condition that would threaten her life. She was 23,…

Continue Reading The Clot Thickens: Athletes Underscore Reasons for DVT Awareness
Are Statins Also Effective In Treating Ovarian Cancer?
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Are Statins Also Effective In Treating Ovarian Cancer?

  • Post author:Athena Lee
  • Post published:July 25, 2017
  • Post category:Ovarian Cancer/Rare Disease

Cancer has a pretty complicated history with statins, a class of drugs that are most commonly used to lower blood cholesterol levels. In the past, laboratory tests involving statins have…

Continue Reading Are Statins Also Effective In Treating Ovarian Cancer?
This Blockbuster Hit Brings the Rare Disease Community into the Spotlight
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This Blockbuster Hit Brings the Rare Disease Community into the Spotlight

  • Post author:Sarah Lau
  • Post published:July 25, 2017
  • Post category:Adult-Onset Still's Disease/Rare Disease

In 1998, The Mighty first brought the rare disease community into the spotlight, followed by Extraordinary Measures in 2010. Now, seven years later, The Big Sick is doing it again…

Continue Reading This Blockbuster Hit Brings the Rare Disease Community into the Spotlight
July is Juvenile Arthritis Awareness Month—Here’s What You Need to Know
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July is Juvenile Arthritis Awareness Month—Here’s What You Need to Know

  • Post author:Athena Lee
  • Post published:July 25, 2017
  • Post category:Juvenile idiopathic arthritis/Rare Disease

July is the month of a lot of great things: The Fourth of July, long summer nights, fresh fruit, fireflies, and summer vacation. But there's something else great about this…

Continue Reading July is Juvenile Arthritis Awareness Month—Here’s What You Need to Know
When Lyme Disease Becomes Endemic in Alabama, You Know There’s a Problem
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When Lyme Disease Becomes Endemic in Alabama, You Know There’s a Problem

  • Post author:Minden Cantrell
  • Post published:July 25, 2017
  • Post category:Lyme Disease/Rare Disease

When I hear about Lyme Disease, I think of Maine, New Hampshire, Vermont. But recently seven counties in Alabama have been declared endemic for Lyme. In fact, the Alabama Department…

Continue Reading When Lyme Disease Becomes Endemic in Alabama, You Know There’s a Problem
Why the Impact of Psoriasis is More Than Just Skin Deep
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Why the Impact of Psoriasis is More Than Just Skin Deep

  • Post author:Sarah Lau
  • Post published:July 25, 2017
  • Post category:Guttate Psoriasis/Psoriatic Arthritis/Rare Disease

A breakout of pimples, a sunburn, and bad dandruff are all skin aliments that we probably faced while growing up, and all probably made us feel lousy, or at the…

Continue Reading Why the Impact of Psoriasis is More Than Just Skin Deep
Mother Lives Positively in the Face of Hunter Syndrome

Mother Lives Positively in the Face of Hunter Syndrome

  • Post author:Nia
  • Post published:July 25, 2017
  • Post category:MPS II (Hunter Syndrome)/Rare Disease

Karl Swaine is nine years old. He has a rare progressive and genetic disorder called Hunter syndrome. This disorder prevents the body from breaking sugar molecules down. Throughout the world,…

Continue Reading Mother Lives Positively in the Face of Hunter Syndrome
PBC Phase II Study Shows Hopeful Results
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PBC Phase II Study Shows Hopeful Results

  • Post author:Athena Lee
  • Post published:July 25, 2017
  • Post category:Primary Biliary Cholangitis/Rare Disease

CymaBay, Inc. recently announced positive provisional results from its low-dose Phase II seladelpar clinical trial for primary biliary cholangitis (PBC) patients. Once you get past the confusing part of that…

Continue Reading PBC Phase II Study Shows Hopeful Results
A Possible Treatment for the Rarest of Adrenoleukodystrophy
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A Possible Treatment for the Rarest of Adrenoleukodystrophy

  • Post author:Athena Lee
  • Post published:July 25, 2017
  • Post category:Adrenoleukodystrophy/Rare Disease

NeuroVia, Inc. is a rare disease pharmaceutical company that primarily focuses on finding treatments to rare neurological diseases. Markedly, this private company is especially concerned about the effects of the…

Continue Reading A Possible Treatment for the Rarest of Adrenoleukodystrophy

OF INTEREST


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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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Catalyst’s LEMS Aware Podcast Helps Connect Patients

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STUDY OF THE WEEK

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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