Parents Win Victory in Newborn Screening for Rare Disease ALD
While cliché, it is still true that children are the future. That is why it is so important that we find ways to protect them where we can and prepare…
While cliché, it is still true that children are the future. That is why it is so important that we find ways to protect them where we can and prepare…
Pack your bags LGS Warriors, your conference is headed to Orlando, FL this November! The LGS Foundation is holding it's fifth International Family and Professional Conference to promote collaboration between LGS…
PW Partner the Amyloidosis Foundation (AF) is hosting their annual amyloidosis research benefit and you won't want to miss it! The AF was founded by two amazing amyloidosis patients who strived…
Researchers who study rare diseases often look at what's going wrong in the body in order to find a treatment. But the team studying rare lung diseases at the Perelman School…
This year, The International Advocate for Glycoprotein Storage Diseases (ISMRD) has moved their International Conference from the US to Rome, Italy! The ISMRD is a non-profit who aims to be…
A recent report from the Food & Drug Administration reveals renewed efforts for the treatment of one of the rarest forms of non-Hodgkin's Lymphoma, Mantle Cell Lymphoma. Due to promising advancement…