Editor’s Choice: Angels, Lessons, Teal Pumpkins and… Fungus?

Happy Friday Patient Worthians!

This week, we have an awesome story about PW Partner Avery’s Angels. We also have a PW Contribution about key lessons everyone can learn from the rare community.

We also have valuable Halloween information for you families wanting to support those of us with dietary restrictions. Lastly, there’s a CF treatment you have got to learn about.

So sit back, relax and enjoy this week’s Editor’s Choice.

 

Angels Take Flight for Gastroschisis Families

PW Partner Avery’s Angels is an awesome non-profit you need to know about.

Check out this article on them here.

Lessons from the Rare Disease Community

PW Contributor Denise has some valuable insight being a member of the rare community.

Check it out here.

Spore No More? Will This New Method of Treating Cystic Fibrosis Infections Work Faster?

This company is developing a therapy specifically to help with fungal infections in the lungs.

Read more on their efforts here.

Get involved in the Teal Pumpkin Project this Halloween

This project is definitely something you want to get involved with to support those kids who want to trick or treat but can’t have candy.

Read more here.

 


Do you have a rare disease experience of your own? Share with us here.
Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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