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Daily Archives: October 13, 2017

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Editor’s Choice: Angels, Lessons, Teal Pumpkins and… Fungus?

Editor’s Choice: Angels, Lessons, Teal Pumpkins and… Fungus?

  • Post author:Patient Worthy Contributor
  • Post published:October 13, 2017
  • Post category:Rare Disease

Happy Friday Patient Worthians! This week, we have an awesome story about PW Partner Avery's Angels. We also have a PW Contribution about key lessons everyone can learn from the…

Continue Reading Editor’s Choice: Angels, Lessons, Teal Pumpkins and… Fungus?
How a Double Lung Transplant Saved the Life of a New Mom
Source: Pixabay

How a Double Lung Transplant Saved the Life of a New Mom

  • Post author:Minden Cantrell
  • Post published:October 13, 2017
  • Post category:Cystic Fibrosis/Rare Disease

Parenthood is one of the greatest joys for most people. But for Fanny Vlahos, a young Michigan woman, holding her infant son is nothing short of miraculous. Vlahos has cystic…

Continue Reading How a Double Lung Transplant Saved the Life of a New Mom
Could a Discovery in Yogurt Science Cure Sickle Cell Anemia?
Source: Pixabay

Could a Discovery in Yogurt Science Cure Sickle Cell Anemia?

  • Post author:Patient Worthy Contributor
  • Post published:October 13, 2017
  • Post category:Sickle cell anemia

Sickle cell anemia results from a single mutation in the hemoglobin gene. The mutation creates a protein which has an atypical structure. This altered structure throws a wrench in the…

Continue Reading Could a Discovery in Yogurt Science Cure Sickle Cell Anemia?
Sweet Iris Leads the Charge against GM1
Javier-Rodriguez / Pixabay

Sweet Iris Leads the Charge against GM1

  • Post author:Chloe Easterbrook
  • Post published:October 13, 2017
  • Post category:Juvenile GM1 gangliosidosis/Rare Disease

Behind her smile of gleaming baby teeth and her bright, sparkling eyes hides a deadly disease. Sweet Iris has a rare condition; one she can barely pronounce—juvenile GM1 gangliosidosis. Yet…

Continue Reading Sweet Iris Leads the Charge against GM1
How to Participate in 2017 Invisible Disabilities Week NEXT WEEK!

How to Participate in 2017 Invisible Disabilities Week NEXT WEEK!

  • Post author:Minden Cantrell
  • Post published:October 13, 2017
  • Post category:Rare Disease

When we think of disabilities, a cane, walker or wheelchair may come to mind. Or perhaps you think of someone who is blind or deaf or has a learning disability.…

Continue Reading How to Participate in 2017 Invisible Disabilities Week NEXT WEEK!
New Drug and New Hope for Acute Myeloid Leukemia
Source: Pixabay.com

New Drug and New Hope for Acute Myeloid Leukemia

  • Post author:Andres Rovira
  • Post published:October 13, 2017
  • Post category:Acute Myeloid Leukemia/Rare Disease

Those that suffer from Acute Myeloid Leukemia (AML) undergo an arduous chemotherapy process and stem-cell transplant. It doesn't seem to be enough as the American Cancer Society states that only…

Continue Reading New Drug and New Hope for Acute Myeloid Leukemia

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