Editor’s Choice: With the Holidays Comes… Innovation?

Happy Friday Patient Worthians!

Gotta love that hectic-catch-up-crazy feeling post-Thanksgiving and pre-December holidays!

We have heartwarming story of a little girl getting the ultimate gift for the holidays. We also have a cool new CF innovation you’ll want to hear about and tips to prevent CKD. Lastly, we have a powerful contribution from a mother of a child with LGS.

So sit back and enjoy this week’s Editor’s Choice.

 

A Little One with Citrullinemia Gets Gift of a Lifetime in Time for the Holidays

The organ donation process is stressful, scary and timely.

Read how this young girl got the match she needed this holiday season.



Novel Innovation Lets You Look Inside Cystic Fibrosis, Literally

CF, while neglected and rare, has made great strides in treatment and innovation over the past few years.

Read more about the latest developments here.



What Would I Do? A Lennox-Gastaut Story

PW Contributor Eva lives every day knowing the potential outcomes that LGS could bring to her family.

Read about her experience here.



Be Kind to Your Kidneys in Just a Few Steps to Help Prevent CKD

Worried about kidney disease?

Get tips on how to be kind to your kidneys here.


Do you have a rare disease experience of your own? Share with us here.

Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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