Even in the most trying circumstances, Caitlin Ronan, a teenager in England, leveraged everything in her power to help others. After several years in the hospital, battling a progressive rare…
Laura Mayben was living in a time of fear and uncertainty as doctors scrambled to figure out what was wrong with her. With most rare diseases, this time of unknown…
Belmax De Jesus was a star runner at Rutgers University. This weekend, she will be running the Philadelphia Marathon in order to raise money for her young son's extremely rare…
Sandra De Santos has thousands of bubble-like tumors on her body due to a rare disease called neurofibromatosis type-1. It's a hard life, but she has spoken out proudly about…
Tasha Nelson's world turned upside down when her son, Jack, was diagnosed with cystic fibrosis (CF). Little did she know, this would turn her into the political advocate she is…
Stevens-Johnson syndrome is a rare, serious skin disorder that affects the mucous membranes and causes painful blistering and peeling. These blisters can even form inside of the body, making it…
Erin Smith and Alex Barker's story is the stuff that dreams are made of. The couple both suffer from moebius syndrome, a rare neurological disorder that causes weakness and paralysis…
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