Cognitive Impairment, Testing, and Disease Burden in MPS II Discussed at Satellite Symposium
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Cognitive Impairment, Testing, and Disease Burden in MPS II Discussed at Satellite Symposium

Today, Professor Elsa Shapiro and Dr. Christina Lampe presented "Cognitive Impairment in Patients with MPS II: From Disease Burden to Cognitive Testing" at Satellite Symposium, an event sponsored by Shire…

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The Patient and Provider Community is Voicing Growing Opposition to the “Right to Try” Bill
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The Patient and Provider Community is Voicing Growing Opposition to the “Right to Try” Bill

According to a post from the National Organization of Rare Disorders, the organization has joined thirty-seven other patient and provider groups and organizations in opposition to the "Right to Try"…

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Ovarian Cancer Survivor Meets Scientist Who Developed Her Life-Saving Treatment
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Ovarian Cancer Survivor Meets Scientist Who Developed Her Life-Saving Treatment

According to a story from SWNS, a grandmother who had survived a battle with ovarian cancer came face to face with the doctor responsible for developing the treatment that saved…

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Satellite Symposium Discusses Long-Term Outcomes for MPS IVA and VI Patients
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Satellite Symposium Discusses Long-Term Outcomes for MPS IVA and VI Patients

Yesterday, a group of experts presented "Changing lives: Long-term outcomes of MPS IVA & VI patients" at the Satellite Symposium sponsored by BioMarin. The program began with insights on the…

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