Patient Worthy’s partner The MDS Foundation will be hosting a patient forum and and their first ever awareness walk in July! The 5k will be held July 20th and the forum will be held July 21st. It will be a great weekend to learn, meet others in the MDS community, and raise awareness.
The Awareness 5k
Date: Friday, July 20, 2018
Location: Boston Common 139, Tremont Street, Boston Proper, MA 02116
Time: 9:00 am – 12:30 pm
The MDS Foundation’s Goals are to:
• Elevate the conversation around the unmet needs of those living with MDS.
• Bring together the MDS and rare disease community and create new connections.
• Reinforce our commitment, along with our partner organizations, to help improve the lives of MDS patients and those who care for them.
• Establish the need and momentum for future MDS walks across the country.
To register for the walk click here.
The patient forum will take place the day after the walk, July 21st.
Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event will give you the opportunity to learn from experts about treatment therapies and strategies for patients and caregivers LIVING with MDS.
Time: 9:30am – 2:00pm
Courtyard Boston Downtown
275 Tremont Street Boston, MA 02116 Library Conference Room
Stuart Goldberg, MD; John Theurer Cancer Center at Hackensack University Medical Center
Sara Tinsley, PhD, ARNP, AOCN Moffitt Cancer Center, Tampa, FL
Topics to be covered:
➢ Defining MDS
➢ Treatment Options, Bone Marrow Transplant & Clinical Trials
➢ Patient & Caregiver Discussions
➢ Quality of Life and Quick Tips for Patients and Caregivers
Registration is required For more information and to register, please contact: Janice Butchko at 1-800-637-0839 Ext. 212 or firstname.lastname@example.org. Register online at: http://www.mds-foundation.org/patient-and-family-forums/