Possible Treatment for Hypothalamic Obesity and Prader-Willi Syndrome Will be Tested in Phase 2 Trial
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Possible Treatment for Hypothalamic Obesity and Prader-Willi Syndrome Will be Tested in Phase 2 Trial

According to a story from GlobeNewswire, the biotech company Saniona has recently announced plans to begin the design and initiation of a Phase 2a clinical trial study of its investigational…

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Results From Trials of Jakavi For Treating Polycythemia Vera and Myelofibrosis Have Been Released
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Results From Trials of Jakavi For Treating Polycythemia Vera and Myelofibrosis Have Been Released

The drug Jakavi (ruxolitinib) is being investigated as a possible treatment for polycythemia vera (PV) and myelofibrosis. Results from studies into this were presented by Novartis at the 23rd Congress of…

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Drug for X-Linked Hypophosphatemia Turned Down in the UK Because of Cost
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Drug for X-Linked Hypophosphatemia Turned Down in the UK Because of Cost

According to a story from Fierce Pharma, the National Institute for Health Care and Excellence (NICE) has decided to reject the drug Crysvita for coverage on the National Health Service…

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Researchers Recommend Genetic Testing For Some Medulloblastoma Sub-Groups

A study that looked into what genetic factors influence medulloblastoma development has been published in Lancet Oncology. In it, researchers outline several genes they believe are linked to tumour formation…

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Take a Pie to the Face for Arthrogryposis Multiplex Congenita Awareness Day!
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Take a Pie to the Face for Arthrogryposis Multiplex Congenita Awareness Day!

A pie to the face?! Yes, you heard right! Saturday, June 30th is Arthrogryposis Multiplex Congenita (AMC) awareness day! It is our duty here at Patient Worthy to shine a light…

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Opera Singer With Idiopathic Pulmonary Arterial Hypertension Experiences Transplant Miracle
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Opera Singer With Idiopathic Pulmonary Arterial Hypertension Experiences Transplant Miracle

“It’s a literal miracle every time I sing,” says Charity Tilleman-Dick. Charity is an opera singer that reaches the top of the charts. That’s miraculous enough for most us. Charity,…

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