The European Parliament is Relaunching their Network for Rare Diseases

The European Parliament has announced that they will be relaunching their "Network of Parliamentary Advocates for Rare Diseases." Its aim is to create a new policy framework which can improve…

Continue Reading The European Parliament is Relaunching their Network for Rare Diseases
For This Woman With Arthrogryposis Multiplex Congenita, This New Barbie is Life-Changing
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For This Woman With Arthrogryposis Multiplex Congenita, This New Barbie is Life-Changing

According to a story from the Huffington Post, a recent Instagram post from the Barbie brand of dolls indicates that the company is beginning to expand its line of dolls…

Continue Reading For This Woman With Arthrogryposis Multiplex Congenita, This New Barbie is Life-Changing
Misha Walker Advocates For Arthrogryposis Patients One State at a Time
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Misha Walker Advocates For Arthrogryposis Patients One State at a Time

  Misha Walker and her husband Mike have spent the summer in England, meeting with families who have children with a rare condition called arthrogryposis multiplex congenita (AMC). In the…

Continue Reading Misha Walker Advocates For Arthrogryposis Patients One State at a Time
Take a Pie to the Face for Arthrogryposis Multiplex Congenita Awareness Day!
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Take a Pie to the Face for Arthrogryposis Multiplex Congenita Awareness Day!

A pie to the face?! Yes, you heard right! Saturday, June 30th is Arthrogryposis Multiplex Congenita (AMC) awareness day! It is our duty here at Patient Worthy to shine a light…

Continue Reading Take a Pie to the Face for Arthrogryposis Multiplex Congenita Awareness Day!
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