The Bleeding Edge: A Documentary Investigates the Safety of Medical Devices
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The Bleeding Edge: A Documentary Investigates the Safety of Medical Devices

The documentary The Bleeding Edge has just been made available on Netflix in the US and UK (27th July 2018). Described by Netflix as “controversial”, the documentary explores the impact…

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Jon’s Adrenoleukodystrophy Journey
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Jon’s Adrenoleukodystrophy Journey

I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…

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Results From Studies of an Experimental Drug for Chronic Kidney Disease Have Been Announced

Results from two studies looking at the effects of an experimental drug (bardoxolone) on kidney function in patients with chronic kidney disease (CKD) have been released. One of the studies…

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Could This Mouth Swab Save Lives? Genepath Test Diagnosis Krabbe Disease and Much More
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Could This Mouth Swab Save Lives? Genepath Test Diagnosis Krabbe Disease and Much More

Ashley Wibberly’s son Levi was born in September of 2013 and lived for just 20 months with Krabbe disease. Ashley couldn’t have seen it coming. Now, however, a new test…

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