Welcome AAMDS, a New Patient Worthy Advocacy Partner!

We’re happy to introduce a new partner to Patient Worthy’s mission of advocating for rare disease patients!

The Aplastic Anemia and MDS International Foundation (AAMDS) supports, connects and educates patients, caregivers and health professionals on bone marrow failure diseases worldwide.

Aplastic anemia is a rare blood disorder which occurs when the body’s bone marrow stops making enough new blood cells due to damaged stem cells and myelodysplastic syndromes (MDS) are a group of conditions that prevent bone marrow from preventing the amount of healthy blood cells that the body needs.

AAMDS  promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and cures for aplastic anemia, MDS, PNH and related bone marrow failure diseases.

They also do substantive work with health professionals, including being administrator of the MDS Clinical Research Consortium – a unique collaboration of six major academic medical centers designed to  maximize the results of MDS clinical trials, to the benefit of patients everywhere.

They also provide services such as:

And so much more!

And speaking of webinars, check out the webinars AAMDS is hosting during the month of August:
These webinars are free and informative and a wonderful resource to have!