May 13, 2022 – Patient Worthy

Feasibility and Safety of Anlotinib Monotherapy for Patients with Previously Treated Advanced Esophageal Squamous Cell Carcinoma: A Real-World Exploratory Study

Post author:Rose Duesterwald
Post published:May 13, 2022
Post category:Acute lymphocytic leukemia Myasthenia Gravis Phase 3 clinical trial Phase III Trial Proteinuria

[Cancer Management and Research](cancer-management-and-research-journal) » [Volume 14](cancer-management-and-research-archive55-v1655) Feasibility and Safety of Anlotinib Monotherapy for Patients with Previously Treated Advanced Esophageal Squamous Cell Carcinoma: A Real-World Exploratory Study Authors [Zhang S](author_profile.php?id=1654738)…

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May is Amyotrophic Lateral Sclerosis Awareness Month: Spreading Rare Disease Awareness

Post author:James Moore
Post published:May 13, 2022
Post category:Amyotrophic Lateral Sclerosis

According to a story from ALS News Today, around 5,000 people get diagnosed with amyotrophic lateral sclerosis (ALS) annually. In addition, costs of treatment for patients average $250,000 out of…

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Connecticut Reports First Powassan Virus Case This Year

Post author:Jessica Lynn
Post published:May 13, 2022
Post category:Rare Disease

According to Fox News, the Connecticut Department of Public Health recently shared that there was at least one diagnosed case of Powassan virus within the state. Typically, it is rare…

Interview: Diagnosing Ankylosing Spondylitis

Post author:Kendall Mason
Post published:May 13, 2022
Post category:Ankylosing Spondylitis Uveitis

The diagnosis of rare diseases can be difficult; they may share symptoms with other disorders, many are not well known, and many don't have specific diagnostic processes. Ankylosing spondylitis acts…

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28-Year-Old Hollyoaks Star Diagnosed with Thyroid Cancer

Post author:Jessica Lynn
Post published:May 13, 2022
Post category:Thyroid Cancer

From 2010-2013, Abi Phillips embraced the role of Liberty Savage on Hollyoaks, a British fictionalized TV series about the lives of teenagers and their families. The program has since been…

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FOP: An Abnormality in the Toe is Actually An Ultra-Rare Disease

Post author:Rose Duesterwald
Post published:May 13, 2022
Post category:Fibrodysplasia Ossificans Progressiva (FOP)

Fibrodysplasia ossificans progressiva (FOP) brings a serious meaning to a commonly-used phrase: ‘My big toe.’ According to a recent article in the Orphanet Journal of Rare Diseases, FOP is an…

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Rare Classroom: Cystinosis

Post author:James Moore
Post published:May 13, 2022
Post category:Cystinosis Cystinosis- ocular nonnephropathic

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

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Cornelia de Lange (CDLS) Syndrome Awareness day is May 14th and Support is Needed Now More Than Ever

Post author:Rose Duesterwald
Post published:May 13, 2022
Post category:Cornelia de Lange Syndrome

It is believed that in 1916 a German doctor named Brachmann first identified a patient with symptoms of a disease later known as Cornelia de Lange syndrome. Then in…

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Feasibility and Safety of Anlotinib Monotherapy for Patients with Previously Treated Advanced Esophageal Squamous Cell Carcinoma: A Real-World Exploratory Study

May is Amyotrophic Lateral Sclerosis Awareness Month: Spreading Rare Disease Awareness

Connecticut Reports First Powassan Virus Case This Year

Interview: Diagnosing Ankylosing Spondylitis

28-Year-Old Hollyoaks Star Diagnosed with Thyroid Cancer

FOP: An Abnormality in the Toe is Actually An Ultra-Rare Disease

Rare Classroom: Cystinosis

Cornelia de Lange (CDLS) Syndrome Awareness day is May 14th and Support is Needed Now More Than Ever

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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