HAE Junior, an advocacy group from the Czech Republic and a Patient Worthy partner organization, is issuing a renewed call for submissions for its Stronger Than HAE art exhibition. This exhibition is intended to spread awareness about hereditary angioedema (HAE), a rare disease, and will be displayed in the Czech Republic parliament building.
About Hereditary Angioedema
Hereditary angioedema is a genetic disorder which is characterized by chronic episodes of swelling that can affect multiple areas of the body. The condition is caused by mutations affecting the SERPING1 gene. Swelling attacks generally occur every two weeks or so; they can usually last for several days. Swelling may affect the limbs, digestive tract, face, and airway, with blockage of the airway being the most dangerous complication. Vomiting and abdominal pain may accompany attacks as well if the digestive tract is involved. Treatment involves reducing the likelihood for attacks to appear and preventing them from worsening when they do. Hereditary angioedema is typically only life-threatening if left untreated. Prevalence of the condition is estimated to be around one in 10,000 to one in 50,000, at least in the US and Canada. To learn more about hereditary angioedema, click here.
Stronger Than HAE
The exhibit is sponsored by Mrs. Marketa Pekarova Adamova, President of the Chamber of Deputies of the Parliament of the Czech Republic. Anyone under age 18 from around the world that has been affecting by the disease, including patients, family members, or friends, is encouraged to participate. The deadline for submission is August 7, 2022.
To learn more about this project, click here.