I thought I wanted a second baby. My son was an adult, and despite having an adorable Frenchie, I was ready to take steps to get to the baby smell.…
15 years ago I released my first PKU project. I never imagined the day would come when I would need to assert my boundaries this firmly. As I write this,…
For most of my life, I knew something was wrong with my body. I just never had a name for it. When I was around 18, I had what I…
For World CML Day (September 22nd), Nancie Steinberg reflects on living with chronic myeloid leukemia and how a cancer diagnosis ultimately led her from patient to advocate. Fourteen years ago,…
Editor's Note: Patient Worthy is honored to share this article from our friends at the Aplastic Anemia and MDS International Foundation. To see the article in its original format, please…
I want to share this to give some ideas I have found that help me move through difficult days with more steadiness and self compassion, especially when things are flaring…
When I was 39 years old, my life changed in an instant. I was a father of two young children, my daughter was six and my son almost six months…
My name is Terri, and I live in the small town of Searcy, Arkansas, where I’ve proudly connected with countless people and their families over the years, especially while working…
Editor's Note: This story was originally written and submitted to us by Anthony Clark. "Okay, Michael, hold the ball up to your ear, then throw it! Just like this: ear,…
This is my son Nikolai. Nikolai was recently diagnosed with Mucopolysaccharidosis type 2, or "Hunter Syndrome." A rare genetic form of childhood dementia, it's caused by a mutation in the…
At the age of 18, I was diagnosed with a rare swallowing disorder called Achalasia. At the time of this video, I had undergone several surgeries, procedures, and countless appointments,…
Editor's Note: We're honored to share the following article from our friends at the Courageous Parents Network. To see this article in its original format, please click here. Parents will…
Editor's Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea, originally written by Bill Phillips, a colorectal cancer survivor. To see the article…
At 22, a young person's world should be filled with possibilities—a career to build, places to travel, friendships to make, and a future to imagine. Instead, this young man, David,…
Have you ever looked in the mirror and wondered, “Who am I now? Why did this diagnosis happen to me? When will this be over? Who will ever love me…
For a long time, I knew something was wrong. And then, when whatever had been building inside my body finally came to the surface, it didn't arrive quietly. It detonated.…
Editor's Note: Patient Worthy is honored to share this article with you, kindly provided to us by our friends at End Sepsis. To see the article in its original format,…
If you had asked me a few years ago what I thought my biggest health concern would be, lung cancer wouldn't have even crossed my mind. I've never smoked. I've…
For more than 20 years, I had a treatment routine that worked. My specialty pharmacy delivered the medications I needed and coordinated trained nurses who came to my home for…
Editor's Note: This article was shared with us by Jo Kaur. To see it in its original format, please click here. Riaan Singh Digeorge, age 6, of New York…
My name is Stephen Savage. I'm happy to say I'm a cancer survivor. I was diagnosed in February, 2019 with a form of adenocarcinoma: esophageal cancer of the lower sphincter.…
Last year, I came down with a severe autoimmune disorder. It came out of nowhere. And it was bad. I was hospitalized three times over the course of a few…
Editor's Note: We are honored to share this story from our friends at CURE SYNGAP. To see this article in its original format, please click here. Porter is one of Jansen’s…
It was 2013, I was 21 years old, studying abroad in Italy, living the semester every college student dreams about. Then I woke up one morning and my body was…
Living with dystonia, or any chronic condition, places the nervous system under continuous pressure and strain. When symptoms are unpredictable or uncomfortable, the brain learns to stay on high alert, anticipating…
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