September 21, 2026 – Patient Worthy

First Responder Stunned by Severe Aplastic Anemia Diagnosis: Greg’s Story

Post author:Patient Worthy Contributor
Post published:September 21, 2026
Post category:Aplastic anemia

Editor's Note: Patient Worthy is honored to share this article from our friends at the Aplastic Anemia and MDS International Foundation. To see the article in its original format, please…

FDA Approves Fayuvi, the First Gene Therapy for Children with Sanfilippo Syndrome Type A

Post author:Kathy Devanny
Post published:September 21, 2026
Post category:MPS III (Sanfilippo Syndrome)

One-time treatment provides a new option for pediatric patients with a rare, progressive genetic disorder As announced in a recent press release, the U.S. Food and Drug Administration has approved…

Creating Inner Space to Reduce Pain and Burnout

Post author:Tom Seaman
Post published:September 21, 2026
Post category:Cervical Dystonia

I want to share this to give some ideas I have found that help me move through difficult days with more steadiness and self compassion, especially when things are flaring…

First Responder Stunned by Severe Aplastic Anemia Diagnosis: Greg’s Story

FDA Approves Fayuvi, the First Gene Therapy for Children with Sanfilippo Syndrome Type A

Creating Inner Space to Reduce Pain and Burnout

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