In an article posted by the Wyoming Medical Center, Dr. Adam Linck clears up some common questions concerning hereditary hemochromatosis. People living with this condition have an excess amount of…
Many individuals living with hemochromatosis can lead normal, healthy lives. Most people living with the condition have the same life expectancy than those without. However, it's important to know some fast…
There is support out there for people living with and/or affected by Waldenstrom macroglobulinemia (WM). Thankfully, according to Patient Worthy Partner International Waldenstrom’s Macroglobulinemia Foundation (IWMF,) a gap may be bridged…
We sometimes hear about iron storage problems, but what does that actually mean? Genetic hemochromatosis (GH) is, as the name clearly states, a genetic disease. That means it's one that…
One young lady is working to bring awareness to Gaucher disease through blogging. Not only does Lauren Edwards share inspirational posts and pictures, she also shares the personal stories of…
It's Guacher Disease Awareness Month! According to eurogaucher.org, International Gaucher Day was a success! This year it was observed on October 1st to bring awareness to Gaucher disease. The European Gaucher…
According to a late-summer press release sent out by the companies, two pharma players are joining forces and making waves in gene therapy for hemophilia A. Sangamo and Pfizer announce…
One author is using laughter to raise awareness about Hemochromatosis, or Iron Overload Disorder. It’s in the form of a book titled, “The Unexpected Consequences of Iron Overload: A Paranormal,…
Imagine having a couple more hours until you have to get up for work, but can’t fall asleep. Or what about feeling sleepy when everyone around you is waking up?…
You’re used to seeing Santa at his workshop, at the mall, under your tree—but at an art exhibit? Well, for one Alaska teen living with cystic fibrosis (CF) that became a…
If you or someone you love has bronchiectasis or COPD, you should be aware of the risk of alpha-1 antitrypsin deficiency, or A1ATD. Alpha-1 antitrypsin disorder is an inherited condition…
Pull out those calendars! If you’ve been searching for an opportunity to connect with others living with Waldenstrom’s macroglobulinemia (WM), or with those who help care for these individuals—this may…
According to an article in The Campbell River Star, NHL stars, Rod Brind’Amour and Ryan Nugent-Hopkins of the Edmonton Oilers traded their hockey sticks for golf clubs (sort of)—all to…
The clock is ticking to sign up for this big conference! Thousands are expected to flood the convention halls at the North American Cystic Fibrosis Conference (NACFC) this November. Indianapolis,…
Want to join in on a Waldenstrom’s Macroglobulinemia discussion, but there isn’t one near you? Well, this might be a great opportunity to take part in one from the comfort…
A record amount of dollars is heading to help those fighting Waldenstrom’s macroglobulinemia (WM). According to its website, for the first time, the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) approved $2.2…
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