Bringing Awareness: Glanzmann Thrombasthenia
Glanzmann thrombasthenia is a bleeding disorder where the proteins that make up receptors on blood platelets are either missing or not working properly. This causes: Easy bruising Nose bleeds Bleeding…
Kristen is a junior and soon to be senior at Christopher Newport University. She has an Associate’s Degree in graphic design, and is working toward her Bachelors in Fine Arts focusing in graphic design. Kristen has a passion for animals and art, and in her spare time likes to paint, or design on the computer as well as playing with her dog Mr. Pickles. Kristen is happy to be moving on to a new chapter of her life soon, getting married at the end of May 2016 and graduating in April 2017.
Glanzmann thrombasthenia is a bleeding disorder where the proteins that make up receptors on blood platelets are either missing or not working properly. This causes: Easy bruising Nose bleeds Bleeding…
So I do not think doctors actually say that Fibrinogen Defiency and Glanzmann Thrombasthenia are medically or scientifically cousins, but when I was reading about them I realized that they are…
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Jessica Gimeno has five diseases, one of those is myasthenia gravis. In her Ted Talk she talks about dealing with those, along with having depression. Go watch! I love that she…
Have you heard of myasthenia gravis? If not, that's not surprising considering it is a rare disease, with about 20 out of 100,000 known sufferers. However it is probably under-diagnosed and those…
One way people spread awareness is by wearing shirts and other items with messages about what they support. If you want to be one of those people and you want to…
June is Myasthenia Gravis Awareness Month and Patient Worthy is here to help the cause. We recently published this great article about having a sense of humor when dealing with myasthenia gravis.…
What do June and snowflakes have in common? June is Myasthenia Gravis Awareness Month, and those afflicted with MG are often called snowflakes because no two people with MG have…
Myasthenia gravis comes from Greek and Latin words meaning grave muscular weakness. It is a is a chronic autoimmune neuromuscular disease defined by fluctuating weakness in the voluntary muscles. It effects…
June is the awareness month for myasthenia gravis. People with MG are known as Snowflakes because no two snowflakes are exactly the same, just like no two people with MG…
My grandpa—who is one of the most steadfast, honest, and true people I’ve ever met in my life—told me this: “The world isn’t made for ordinary people anymore.” Being a…
Photo by Sandro Georgi Photography "Don’t let Dystonia define who you are. Don’t let it control every single aspect of your life. For myself, it is part of me. It is…
Photo by Sandro Georgi Photography "My hope is that my condition finds cures so that other people don’t have to go through it and their kids don’t have to see…
You know what a cool word is? Twibbon What is a Twibbon? Those things you see on people's profile pictures on Facebook and Twitter to show support for what they…
For all you dads out there who have had to learn how to be a father while dealing with the struggles of having a rare disease, you are an inspiration…
Dad's are great at a lot of things. Especially Dad jokes, the kind of jokes that are so cheesy that they are actually kind of funny. Happy Father's Day to…
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Walking is a popular thing for people to do nowadays when they want to show their support and help raise money for something that is close to their hearts. If…