Kristen is a junior and soon to be senior at Christopher Newport University. She has an Associate’s Degree in graphic design, and is working toward her Bachelors in Fine Arts focusing in graphic design. Kristen has a passion for animals and art, and in her spare time likes to paint, or design on the computer as well as playing with her dog Mr. Pickles. Kristen is happy to be moving on to a new chapter of her life soon, getting married at the end of May 2016 and graduating in April 2017.
It's not easy to be a Rare Dad and sometimes it helps to be around other people who are in similar shoes. SALT is a multi-day program created for dads of…
"Health is not valued until sickness comes." - Thomas Fuller June 13-19 is Men's Health Week, and the last day is Father's Day. A great way to stay healthy is…
I wrote this poem about my father. He is not a rare dad, but I feel like he can be an inspiration for those going through hard times. He hurt…
Men's Health Week is June 13th to 19th. It is to remind men to get a check up to help catch preventable illnesses, and encourage early detection and treatment of disease…
Myasthenia Gravis (MG) is also referred to as the snowflake disease because every snowflake is different, much like how MG affects each person differently. Click here and to learn more, courtesy…
On average, women live five years longer than men. Of course we want to spend as many days possible with the men in our lives. June 13th - June 19th…
Fathers often seem to have the great knack for good story telling. Growing up I always wanted a story from my father. This Father's Day, the world should hear the life…
If you know or are a rare dad who is the parent of a child with a rare disease, or are a rare dad who has a rare disease, tell your story! Shed…
Cystinosis is most often diagnosed before the age of two. Through medical advances over the last 20 years the prognosis for those with cystinosis has improved. Now more and more…
May is Lyme Disease Awareness Month. Read more here, be informed and learn how you can be a part of the solution.
Spread the word about Lyme with the Lyme Disease Challenge, then donate to help fight the disease! Take a bite. Share a fact. Pass it on! FACT: Lyme Disease has…
One of the truest ways to help those with rare diseases is to make people aware of them. The more people who are aware, then more people can donate. The more…
The Lyme Disease Challenge can be fun for everyone! Even dogs can make some pretty funny faces and help raise awareness. Get your four legged friend in on the action!…
Are you ready for the Lyme Disease Challenge? Have fun and do something good at the same time: Challenge your friends and make the funniest face you can muster up! Lyme Disease…
Can you and your friends handle the Lyme Disease Challenge? Challenge someone and find out! Take a bite. Share a fact. PASS IT ON! (The funnest part is seeing your…
In the article The Burning Question After a Lyme Diagnosis: What’s Next?, the second part of Alexis Rosen’s story is detailed. A woman whose diagnosis of Lyme disease took eight months.…
The side effects of Lyme disease treatment can be incredibly painful. One side effect is called herxing, also known as the Herxheimer Reaction, which is the body’s reaction to detoxification. This…
It's time to make some faces for Lyme. Do the Lyme Disease Challenge to spread the word about Lyme and have fun making funny faces with your friends! To learn…
Some people may not understand the seriousness of Lyme and what those effected with it, or even the people in those people's families go through. It can have so many…
There Is Hope For Those With HAE. The more you know, the more normal of a life you or your loved one can lead. Check out haea.org and don't let HAE…
Sometimes people just don't understand how much of a big deal Lyme can be. Can you imagine if you had that disease and someone told you "Oh, that shouldn't be a big…
May 16th is HAE Day. Participate in raising awareness by joining the campaign to cover the world with smiles.
If you or someone you know and love has Lyme, then you know how important it is for the medical community to have as much information as possible about it. Senator…
A lot of people's journey to their Lyme diagnoses starts because they thought they had the flu. The symptoms for Lyme can be wildly contrasting, and two separate cases can look…
For a child without a rare disease, a mother is a lot of things: chef, financial adviser, maid etc. All moms deserve kudos for their hard work. Raising a child…
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