Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Continue ReadingCompassion Corner: The Challenges and Barriers Are Universal
According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…
Continue ReadingScientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
The symptoms of terminal pancreatic cancer are subtle. The disease is usually not diagnosed until it has substantially progressed, leaving a dismal five-year overall survival of five to ten percent.…
Continue ReadingThe Weather Can Change in an Hour, But a Terminal Cancer Diagnosis Changes Your Life In Minutes
The primary cause of death in melanoma patients is widespread metastases. Currently, there is no cure in cases of relapse or in advanced stages. A recent article in Science…
Continue ReadingMetastatic Melanoma: Chemotherapy and BRAF Oncogene Inhibitors
Following several Patient Worthy articles on the subject earlier this year, Fierce Biotech recently published news that Biogen is preparing to release the Phase III VALOR trial drug, tofersen,…
Continue ReadingIs There a Right or Wrong in the Debate Between Patients and Manufacturers to Release Drugs Through Compassionate Use?
The name of the organization is Disease InfoSearch. It is not only a resource for credible information but guides patients and families to valuable support groups and participation in…
Continue ReadingA Resource for Information About a Rare Disease or Related Organization
This question is what the doctors at Massachusetts’ Cambridge Hospital were trying to determine. According to a recent article in the New York Times, a twenty-two-year-old man was rushed to…
Continue ReadingIf It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?
The patient sitting in front of this physician was later diagnosed with severe chronic fatigue syndrome (myalgic encephalomyelitis or ME/CFS). But for now, the patient had to endure humiliation…
Continue ReadingThese Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”
The Hindustan Times recently published an article that again puts CRISPR at the forefront of medical news. The newest CRISPR tool was designed to identify Sars-CoV-2 and prevent the transmission…
Continue ReadingNew CRISPR Tool Identifies Sars-CoV-2 With the Potential to Prevent Transmission
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
Continue ReadingCompassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds
According to an article in NCBI’s Drug In Context, it took the combined services of the internal medicine, neurology, and psychiatry departments to diagnose this rare disease. Anti-NMDAR encephalitis…
Researchers at NYU Abu Dhabi (NYUAD) have discovered the code that is associated with the liver’s genome (complete set of DNA) and its ability to regenerate. According to a…
Continue ReadingNYUAD Researchers Identify the Code That Regulates Liver Regrowth: A New Form of Regenerative Medicine May Follow
Beijing, China: According to an article in a sister publication of Sixth Tone, a woman living in China who has been treated during the past fourteen years for paroxysmal nocturnal…
Continue ReadingThe First Patient in China to be Accepted Under its 2019 Compassionate Use Policy
Having thoracic outlet syndrome (TOS), a medical condition characterized by the compression of nerves and blood vessels, can hinder a person’s productivity and ability to hold active professions and lifestyles.…
Thanks to advances in immunotherapy, liver cancer (Hepatocellular carcinoma-HCC) has seen a rise in treatment options for patients in advanced stages of the disease. HCC is one of the…
Continue ReadingCould Hepatocellular Carcinoma Cause One Million Deaths Annually by 2030?
The answer lies in the loss of endoplasmic reticulum (ER) calcium and protein which leads to cardiovascular, musculoskeletal, viral, and neurodegenerative diseases. ER performs many important cellular functions including…
Continue ReadingThis Cell Organelle Could be a Key Factor in Future Treatments
Claire Richmond can be considered a very experienced patient. It took Claire nineteen years to receive a diagnosis for her rare disease. During that time, she had been dismissed…
Continue ReadingFor People With a Rare Disease, This Patient Recommends Adding a PCP to Your List of Doctors
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
Continue ReadingCompassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’
Clustered Regularly Interspaced Short Palindromic Repeat (CRISPR), according to NCBI, are sequences that replicate and infect bacterial cells. CRISPR has been in the news recently, but this time it has…
Continue ReadingA Breakthrough Using CRISPR’s Gene Editing Technology to Cure a Genetic Disorder
According to a recent article in Genetic Engineering and Biotechnology News, the blood-brain barrier (BBB) regulates the movement of molecules, cells, and ions between the brain and the blood. Tightly…
Continue ReadingNew Method Could Help Drugs Cross the Blood-Brain Barrier
Adhik is alive today thanks to the skill and generosity of the Amirita Hospital in India and others who contributed to the cost of using the highly regarded, but…
Continue ReadingPlease Do Not Say COVID is Harmless. Ask The Parents of 11 Year Old Adhik.
Alois Alzheimer, a clinical psychiatrist and expert in the study of the nervous system, reported a disease process of the cerebral cortex. The year was 1906. We are approaching July…
Continue ReadingTwo Decades of Research May Be Reversed by a New Alzheimer’s Discovery
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Continue ReadingCompassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided
According to the Centers for Disease Control, one in ten people are carriers of a disease-causing bacteria called Neisseria meningitidis. In most cases, they will not experience adverse effects. However,…
Continue ReadingHer Parents Thought It Was Food Poisoning, But She Died of Meningococcal Disease
An exciting article in the Guardian published last year and a confirming article published this month state that new diagnostic technology has shown ‘impressive results’. This test can spot tumors…
Continue ReadingHelp Is On The Way With A Blood Test That Can Detect 50 Types of Cancer
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