Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Continue ReadingCompassion Corner: Compassion versus Depersonalization in Healthcare
A recent article in Genetic Engineering and Biology News describes a study conducted by Gladstone Institute researchers that brings new insights to the role of genes in connection with…
Continue ReadingPINK1 and Parkin Genes Associated with Parkinson’s Disease
When Caren was eighteen years old her parents were, in fact, given two options. If they were unwilling to consent to a lobotomy, Caren would remain in the dark ward…
Continue ReadingIn the 1960s a Lobotomy Was the Only Option for Caren
Lisa Stockmann Mauriello began her petition to Biogen almost one year ago. In her letter to the developers, Biogen and Ionis Pharmaceuticals, Lisa explained that she has an inherited form…
Continue ReadingLisa Received Her Long-Awaited ALS Treatment, but Is It Too Late?
A study found on Medscape confirms that the human immune system and the human brain are the most complicated in our biological systems. The two systems are responsible for…
Continue ReadingA Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy
Over ten years ago two Nobel-Prize-winning biologists, Emmanuelle Charpentier and Jennifer Doudna, discovered a technology called CRISPR (clustered regularly interspaced short palindromic repeats). Bacteria contain genetic sequences repeated throughout…
According to an article published in EuroNews, the National Cancer Institute has announced that MIT researchers have developed a device that can locate cancer cells during urine tests. The device…
Continue ReadingNanoparticle Diagnostics: One Small Step for Researchers and One Giant Leap Against Cancer
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
Continue ReadingCompassion Corner: The Effect of Masking and Distancing on Doctor-Patient Relationship
A recent article in Parkinson’s News Today announced that a new study indicates that high blood pressure has been associated with Parkinson’s disease in Singapore’s Han population. This is…
Continue ReadingHigh Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group
To the vaccinated, it may feel like the COVID-19 pandemic is finally over, but a convergence of the Delta variant, rising long COVID cases, a higher number of breakthrough…
Continue ReadingLong COVID Should Be Considered When Easing Pandemic Restrictions
As reported recently in Medscape, forty-eight patients with myotonic dystrophy type 1 (DM1), were identified by way of the DM-Scope registry, which is the largest collection of data for the DM population. The…
Continue ReadingMetformin May Improve Mobility in Myotonic Dystrophy Type 1 Patients
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Continue ReadingCompassion Corner: The Challenges and Barriers Are Universal
According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…
Continue ReadingScientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
The symptoms of terminal pancreatic cancer are subtle. The disease is usually not diagnosed until it has substantially progressed, leaving a dismal five-year overall survival of five to ten percent.…
Continue ReadingThe Weather Can Change in an Hour, But a Terminal Cancer Diagnosis Changes Your Life In Minutes
The primary cause of death in melanoma patients is widespread metastases. Currently, there is no cure in cases of relapse or in advanced stages. A recent article in Science…
Continue ReadingMetastatic Melanoma: Chemotherapy and BRAF Oncogene Inhibitors
Following several Patient Worthy articles on the subject earlier this year, Fierce Biotech recently published news that Biogen is preparing to release the Phase III VALOR trial drug, tofersen,…
Continue ReadingIs There a Right or Wrong in the Debate Between Patients and Manufacturers to Release Drugs Through Compassionate Use?
The name of the organization is Disease InfoSearch. It is not only a resource for credible information but guides patients and families to valuable support groups and participation in…
Continue ReadingA Resource for Information About a Rare Disease or Related Organization
This question is what the doctors at Massachusetts’ Cambridge Hospital were trying to determine. According to a recent article in the New York Times, a twenty-two-year-old man was rushed to…
Continue ReadingIf It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?
The patient sitting in front of this physician was later diagnosed with severe chronic fatigue syndrome (myalgic encephalomyelitis or ME/CFS). But for now, the patient had to endure humiliation…
Continue ReadingThese Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”
The Hindustan Times recently published an article that again puts CRISPR at the forefront of medical news. The newest CRISPR tool was designed to identify Sars-CoV-2 and prevent the transmission…
Continue ReadingNew CRISPR Tool Identifies Sars-CoV-2 With the Potential to Prevent Transmission
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…
Continue ReadingCompassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds
According to an article in NCBI’s Drug In Context, it took the combined services of the internal medicine, neurology, and psychiatry departments to diagnose this rare disease. Anti-NMDAR encephalitis…
Researchers at NYU Abu Dhabi (NYUAD) have discovered the code that is associated with the liver’s genome (complete set of DNA) and its ability to regenerate. According to a…
Continue ReadingNYUAD Researchers Identify the Code That Regulates Liver Regrowth: A New Form of Regenerative Medicine May Follow
Beijing, China: According to an article in a sister publication of Sixth Tone, a woman living in China who has been treated during the past fourteen years for paroxysmal nocturnal…
Continue ReadingThe First Patient in China to be Accepted Under its 2019 Compassionate Use Policy
Having thoracic outlet syndrome (TOS), a medical condition characterized by the compression of nerves and blood vessels, can hinder a person’s productivity and ability to hold active professions and lifestyles.…
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