More Renal Cell Carcinoma Treatments Improve Patient Outcomes: George and Shaun’s Stories
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More Renal Cell Carcinoma Treatments Improve Patient Outcomes: George and Shaun’s Stories

  "I thought it was a hernia." When George Benson experienced lower abdominal pain in 2009, at age 51, he wasn't concerned. He was a truck driver, artist, and family…

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Biotherapeutics Reduced This Patient’s Tumors After Seven Other Therapies Failed

A recent Biospace article covers a news release from 4D Pharma in Leeds, England. 4D has announced the first worldwide clinical confirmation of a biotherapeutic product. MRx0518 has been combined…

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‘No Cure, No Pay’ Model in the Netherlands Means Patients Don’t Pay Unless Their Therapy Works

No Cure, No Pay Emile Voest, an oncologist in the Netherlands, conceived the idea of a no cure, no pay model. After witnessing the exorbitant cost of drugs, some of…

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New Collaboration Will Test Live Biotherapeutics Against Different Cancers
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New Collaboration Will Test Live Biotherapeutics Against Different Cancers

According to a story from finanznachrichten.de, the biotherapeutics company 4D pharma has recently announced a research partnership with the MD Anderson Cancer Center at the University of Texas. The goal of…

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New Resources Could Improve Drug Development for Fibrodysplasia Ossificans Progressiva

Ipsen has just announced that they will be acquiring Clementia Pharmaceuticals. This merging of companies is exciting for the rare community because it will strengthen the resources, knowledge-base, and overall…

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Merck’s Keytruda in Combination with Pfizer’s Inlyta Significantly Improved Overall Survival and Progression-Free Survival in Therapy for Metastatic or Advanced Renal Cell Carcinoma

  The treatment of metastatic renal cell carcinoma (RCC) has evolved over the last ten years and investigators now look towards combination therapies to improve response rates and durability for…

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FDA Approves Drug for Previously Treated Hepatocellular Carcinoma Patients
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FDA Approves Drug for Previously Treated Hepatocellular Carcinoma Patients

According to an article from Global Banking & Financing Review, the California-based pharmaceutical company Exelixis, Inc. has announced the FDA's approval of their drug Cabometyx (cabozantinib) for patients previously diagnosed…

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New Combination Therapy for Renal Cell Carcinoma Gains European Approval
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New Combination Therapy for Renal Cell Carcinoma Gains European Approval

According to a story from BioPortfolio, the Bristol-Myers Squibb Company recently announced that the European Commission has recently approved the first combination treatment for renal cell carcinoma available in the…

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Interim Trial Data Released for Potential Renal Cell Carcinoma Treatment Announced
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Interim Trial Data Released for Potential Renal Cell Carcinoma Treatment Announced

According to a story from BioSpace, EUSA Pharma and AVEO Oncology recently announced the release of updated interim results from the second Phase of a Phase Ib/2 clinical trial which…

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Recent Discovery Could Lead to New Treatment Approach for Renal Cell Carcinoma

According to a story from Science Daily, researchers have discovered a mechanism that drives the development of renal cell carcinoma. This mechanism could lead to new therapeutic approaches that take…

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American Society for Clinical Oncology’s Annual Meeting: Summary of Rare Cancer Findings
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American Society for Clinical Oncology’s Annual Meeting: Summary of Rare Cancer Findings

According to a story from currentargus.com, the annual meeting of the American Society for Clinical Oncology, which takes place in Chicago, is the largest convergence dedicated to cancer research in…

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Pfizer is Likely to Halt It’s Phase 3 Trial of a Treatment for Recurrent Kidney Cancer Following Disappointing Results
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Pfizer is Likely to Halt It’s Phase 3 Trial of a Treatment for Recurrent Kidney Cancer Following Disappointing Results

The phase 3 trial of the drug Inlyta for the treatment of patients with a high risk of recurrent renal cell carcinoma (kidney cancer) following nephrectomy (removal of a kidney)…

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TNF Inhibitors May Put Children at Risk For Rare Cancers, Study Says
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TNF Inhibitors May Put Children at Risk For Rare Cancers, Study Says

According to an article from Righting Injustice, a recent study suggests that TNF inhibitors may increase the risk of rare cancers in pediatric patients. The study recommends that children that…

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This Inspirational Irish Man’s Cancer Returned Again, But Now He is Raising Money For Treatment
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This Inspirational Irish Man’s Cancer Returned Again, But Now He is Raising Money For Treatment

Michael Mullan was only a baby when he was diagnosed with cancer for the first time-- specifically neuroblastoma, a childhood cancer which had a low survival rate. Since then, he…

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The European Commission Just Approved MVASI, One of The First Biosimilar Cancer Drugs
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The European Commission Just Approved MVASI, One of The First Biosimilar Cancer Drugs

According to an article from PRNewswire, the drug MVASI (biosimilar bevacizumab) was just granted marketing authorization by the European Commission. Developed by Amgen and Allergan, this treatment has been approved…

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New Combination Treatment Could Improve Outcomes In Renal Cell Carcinoma
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New Combination Treatment Could Improve Outcomes In Renal Cell Carcinoma

According to an article at publicnow.com, the FDA has granted Breakthrough Therapy Designation to avelumab combined with INLYTA (axitinib) for people with advanced renal cell carcinoma. This designation should accelerate…

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Looking for Romantic Gift Ideas? This Woman Gave Her Soul Mate Her Kidney
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Looking for Romantic Gift Ideas? This Woman Gave Her Soul Mate Her Kidney

It was a classic story of boy-on-dialysis-waiting-for-a-kidney-transplant meets girl. The year was 1997. Larry Wetsch's kidneys were in dire state, hardening due to a rare disease called glomerulonephritis. Glomerulonephritis happens when…

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Why NCATS Director Christopher Austin, MD Might Be the Rare Disease Advocate’s New Best Friend

Day two of Global Gene's 2017 Patient Advocacy Summit started out with a fire side chat with Christopher Austin, MD, the Director of the NIH's National Center for Advancing Translational…

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Argos Therapeutics to “Adapt” to the ADAPT Trial
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Argos Therapeutics to “Adapt” to the ADAPT Trial

In April of this year, Argos Therapeutics reported interim results from its Phase 3 ADAPT clinical trial of rocapuldencel-T in combination with the normal standard-of-care for the treatment of newly…

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This Drug Could be a Second Chance at Renal Cell Carcinoma Remission
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This Drug Could be a Second Chance at Renal Cell Carcinoma Remission

Xynomic Pharma, a United States-based oncology research and development company, announced at the end of last month that it had entered into a partnership with the University of California San…

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