A Phase 3 Study Has Shown Encouraging Results for an Investigational Treatment for Dravet Syndrome
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A Phase 3 Study Has Shown Encouraging Results for an Investigational Treatment for Dravet Syndrome

Zogenix, Inc has announced the top-line results from a Phase 3 study of the investigational drug ZX008 (low-dose fenfluramine hydrochloride) for the treatment of young patients with Dravet syndrome. The…

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First Drug Made From Cannabis Approved by the FDA For Dravet Syndrome and Lennox-Gastaut Syndrome
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First Drug Made From Cannabis Approved by the FDA For Dravet Syndrome and Lennox-Gastaut Syndrome

According to a story from the Washington Post, the US Food and Drug Administration (FDA) has cleared the approval of Epidiolex®, a solution whose active ingredient is a refined version…

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Most Epilepsy Patients Benefit From Current Medications, But Look Forward to New Treatments

According to a story from Scimex, a recent assessment of available treatments for Dravet syndrome and other types of epilepsy has reaffirmed that anticonvulsant medications are still the most effective…

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Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy
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Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy

According to a story from edinburghnews.com, mother Karen Gray is about to seek access to cannabidiol oil for her five-year-old son, Murray, who has a rare type of epilepsy, Myoclonic Astatic…

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A Groundbreaking Marijuana-Derived Treatment is Getting Closer to FDA Approval for Treating Rare Forms of Epilepsy
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A Groundbreaking Marijuana-Derived Treatment is Getting Closer to FDA Approval for Treating Rare Forms of Epilepsy

According to a story from statnews.com, a drug derived from substances originating in the cannabis plant may be nearing approval by the U.S. Food and Drug Administration. The drug is…

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An Experimental Drug Was Helping A Girl With Dravet Syndrome. Will She Lose Access After the Trial?
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An Experimental Drug Was Helping A Girl With Dravet Syndrome. Will She Lose Access After the Trial?

According to a recent story from CityNews Toronto, Alara Ozkose's Dravet syndrome was preventing her from being able to live a life that was even close to normal. She was…

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UK Family Travels to The Netherlands To Find Treatment For Their Daughter With Dravet Syndrome
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UK Family Travels to The Netherlands To Find Treatment For Their Daughter With Dravet Syndrome

According to BelfastLive, Darren and Danielle Gibson, the parents of little six-year-old Sophia battling Dravet syndrome, traveled out of the country in search of the care she needs. For the…

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ICYMI: GW Pharmaceuticals Gets FDA Acceptance Letter for New Drug Review
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ICYMI: GW Pharmaceuticals Gets FDA Acceptance Letter for New Drug Review

A little more hope is given to individuals suffering from Lennox-Gastaut syndrome and Dravet syndrome as GW Pharmaceuticals shared the U.S. FDA will indeed be accepting their application for potential…

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What Do You Know About Cannabidiol Drug Interactions?
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What Do You Know About Cannabidiol Drug Interactions?

Recent studies have shown promising results that cannabidiol (CBD) helps relieve different forms of epileptic seizures like those from Lennox-Gastaut syndrome and Dravet syndrome. Lennox–Gastaut syndrome (LGS) is particularly severe, childhood…

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Editor’s Choice: Soo Many Promising Results, Advancements and Treatment Options for the Rare Disease World!

TGIF Patient Worthians! This week we have promising results on promising results. First up is news on a Dravet syndrome treatment. Second is a Lupus Nephritis drug in the works! Third…

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How This Pup Changed the Life of a Little Girl with Dravet Syndrome
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How This Pup Changed the Life of a Little Girl with Dravet Syndrome

Elizabeth couldn’t speak. She wasn’t expected to ever utter a word. She couldn’t read. She struggled to make trips outside of the house. Certain smells and loud sounds bothered her.…

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Epilessia infantile
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Epilessia infantile

GW Pharmaceuticals sta scoprendo ... Epidiolex® (fabbricato e testato da GW Pharmaceuticals) è un candidato medico cannabinoide medico per il trattamento di sindromi di epilessia rara, resistente e precoce, come…

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Peut-on guérir l’épilepsie infantile?
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Peut-on guérir l’épilepsie infantile?

GW Pharmaceuticals découvre ... Epidiolex® (fabriqué et testé par GW Pharmaceuticals) est un candidat cannabinoïde médical leader pour le traitement de syndromes d'épilepsie rares, résistants et débutants tels que le…

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Could Weed Cure Childhood Epilepsy?
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Could Weed Cure Childhood Epilepsy?

GW Pharmaceuticals is finding out... Epidiolex® (manufactured and tested by GW Pharmaceuticals) is a leading medical cannabinoid candidate for the treatment of rare, resistant, and early-onset epilepsy syndromes such as…

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This Mother and Son Are Climbing Mountains for Dravet Syndrome (Literally)
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This Mother and Son Are Climbing Mountains for Dravet Syndrome (Literally)

In support of Dravet syndrome, Annabel Hughes and her son Henry, will be climbing Ben Nevis on June 17—Britain’s tallest mountain. The Hughes family has been directly affected by this…

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Learn More About Dravet Syndrome Clinical Trials for Children and Young Adults
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Learn More About Dravet Syndrome Clinical Trials for Children and Young Adults

FAiRE is a clinical study program for children and young adults with Dravet syndrome. On their website, they provide information and an opportunity to get involved and be a study…

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