New Personal Kinetigraph (PKG) Allows Parkinson’s Patients in the UK to Connect with their Specialists

  Although guidelines for Parkinson’s patients suggest that they visit a specialist every six months, according to a report in Parkinson’s News Today, the waiting period may be up to…

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Research Aims to Understand the Mechanism of Neuron Death in Amyotrophic Lateral Sclerosis
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Research Aims to Understand the Mechanism of Neuron Death in Amyotrophic Lateral Sclerosis

According to a story from news-medical.net, the process that causes the neurons responsible for voluntary muscle movement in amyotrophic lateral sclerosis (also known as Lou Gehrig's disease) to die is…

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Study Suggests that Spleen Artery Aneurysms May be more Common in Gaucher Disease than Previously Thought

According to a story from Gaucher Disease News, a recently published case report study suggests that instances of splenic artery aneurysm are being underreported in patients with Gaucher disease. The…

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Theranexus Releases Early Data from its Narcolepsy Clinical Trial
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Theranexus Releases Early Data from its Narcolepsy Clinical Trial

According to a story from finanznachrichten.de, the biopharmaceutical company Theranexus has recently released preliminary results from a Phase II clinical trial that is testing the company's experimental product THN102. This…

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Recent Study Demonstrates Smartphone App’s Ability to Detect Early Signs of Movement Disorders
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Recent Study Demonstrates Smartphone App’s Ability to Detect Early Signs of Movement Disorders

According to a story from Parkinson's News Today, a recent study describes the ability of an innovative smartphone app that uses touch-based input in order to detect the early signs…

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Results of Levodopa Study Highlight Why Better Parkinson’s Disease Therapies are Needed
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Results of Levodopa Study Highlight Why Better Parkinson’s Disease Therapies are Needed

According to a story from Parkinson's News Today, a recent study published in the New England Journal of Medicine highlights the key weakness of Levodopa, one of the most common treatments…

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Nerve Damage Blocking Gene Therapy Could be Useful in a Variety of Rare Diseases
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Nerve Damage Blocking Gene Therapy Could be Useful in a Variety of Rare Diseases

According to a story from brightsurf.com, a team from the Washington University School of Medicine, based in St. Louis, has succesfully developed a gene therapy that appears to prevent damage…

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30 Million Euros Allocated to Fund Precision Medicine Research Projects for Neurodegenerative Diseases

Precision mNedicine is the latest craze in rare disease research. Thankfully for patients, it is completely, 100% centered on improving the quality of their care. Unlike most typical healthcare practices,…

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National Geographic Features Innovative Research That Will Advance Precision Medicine

Perhaps the most difficult thing about rare disease research is that not only do the conditions affect only a small portion of the population, but like every diagnosis, they affect…

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Stanford PhD Candidate Creates Platform for Parkinson’s Disease Patients to Share Their Story with Researchers

"Beyond research motivation, I want to give a voice to the disease to help researchers empathize and further understand who all their hard work is going toward." These are words from…

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CZI has Committed 64 Million Dollars to the Research of Neurodegenerative Disorders

Neurodegenerative disorders affect millions of people across the world. They include Amyotrophic Lateral Sclerosis, Parkinson's disease, Huntington's disease, and Alzheimer's disease, among others. For most neurodegenerative diagnoses, there are no effective treatments, no…

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