Two Best Friends With Primary Immunodeficiency Meet for the First Time in Cape Town, South Africa
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Two Best Friends With Primary Immunodeficiency Meet for the First Time in Cape Town, South Africa

According to a story from Cape Town Etc, two girls in South Africa were living with the same rare disease: primary immunodeficiency (PI), a group of rare conditions in which…

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Specialty Pharmacists Play Important Role in Treatment of Primary Immunodeficiency Patients
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Specialty Pharmacists Play Important Role in Treatment of Primary Immunodeficiency Patients

A recent publication from Specialty Pharmacy Times noted that the rapidly-growing number of available human immunoglobulin treatments for primary immunodeficiency disorders could pose challenges for specialty pharmacists when treating patients.…

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Enrollment Opens for Phase 3 Study of Intravenous Immunoglobulin in Primary Immunodeficiency Patients

According to a publication from BioSpace, New Jersey-based Kedrion Biopharma recently announced the enrollment of the first participant in their CARES10 study. CARES10 is a phase 3 study of a…

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Primary Immunodeficiency in Children: Early Intervention is Important
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Primary Immunodeficiency in Children: Early Intervention is Important

According to a story from The Indian Express, early treatment and diagnosis of primary immunodeficiencies makes management of this group of disease much simpler as a whole. In children, the…

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Possible Treatment for WHIM Syndrome Earns Orphan Drug Designation in the EU
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Possible Treatment for WHIM Syndrome Earns Orphan Drug Designation in the EU

According to a story from home.suddenlink.net, the biopharmaceutical company X4 Pharmaceuticals recently announced that the European Commission has granted Orphan Drug designation to the company's lead investigational drug candidate, mavorixafor.…

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A Plasma Shortage is Affecting Common Variable Immune Deficiency Patient’s Access to Treatment

Heather White Heather White is a 41-year-old woman who was diagnosed with common variable immune deficiency (CVID) back in 2004 after fighting frequent bouts of pneumonia. Doctors believe that she…

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Teenage Girl Walks Again After Finally Getting Diagnosed With Complement C1q Deficiency and Bone Marrow Transplant
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Teenage Girl Walks Again After Finally Getting Diagnosed With Complement C1q Deficiency and Bone Marrow Transplant

  A young girl in Mauritius, an island in the Indian Ocean, has recently been given a second chance at a normal life after receiving a rare disease diagnosis and…

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Vogmask Offers a Stylish Face Mask for Those Living with Immunodeficiencies

Vogmask is a San Francisco, California based company founded in 2011. They create stylish facial masks to protect wearers from inhalation of particulate and allergens. These types of masks can…

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X4 Pharmaceuticals Reports Positive Phase 2 Results for WHIM Syndrome Drug

According to an article published by Biospace, X4 Pharmaceuticals, based in Cambridge, Massachusetts, has recently announced successful phase two results in clinical trials for their experimental drug X4P-001. The drug…

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No-Cost Disease Diagnosis and Immunoglobulin Therapies Now Available to Children with Primary Immunodeficiency Diseases
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No-Cost Disease Diagnosis and Immunoglobulin Therapies Now Available to Children with Primary Immunodeficiency Diseases

Primary immunodeficiency diseases account for hundreds of rare and chronic diseases. In children, this may mean that their immune system is non-existent or doesn't perform as expected. To learn more…

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