Meet the Attwood family. Out of the 8 family members present, 4 of them are living with Hereditary Angioedema. The heart of the family is led by a strong women…
Just because Burger King ditched "have it your way" as a slogan doesn't mean you have to! Once diagnosed, living with Common Variable Immunodeficiency (CVID) requires lifetime infusion treatment. The pillar of treatment…
Ankylosing Spondylitis is no joke. It is a serious condition that can cause a lot of pain. You wouldn't guess it from these twitter users who are making light of…
Helping hands can do truly amazing things. Eurodis, the champions of Rare Disease Day, displays that in their 2015 Rare Disease Day theme video. https://www.youtube.com/embed/zQIeiQ7S6tQ Started with a cause…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
