Imagine being an incredibly happy and active 8 year old who loves sports. Now imagine your knees and ankles swelling up. You look down at your hands and your fingers…
How did CVID patients earn their stripes? Zebras are viewed as unique. They are only found in limited locations with specific environments; they flaunt stripes that are iconic to their…
There are some crazy diseases out in the world today, and hereditary angioedema, or HAE, is one of them. To see the symptoms in action, you may have to rub your…
Suffering From HAE?! Biofeedback Reporting May Save Your Life! There's a lot of buzz on BioRx, a national specialty pharmaceutical company, based in Cincinnati, Ohio. It's established a successful Biofeedback…
Patients with Ankylosing Spondylitis can suffer terrible backaches. Heating pads are an easy option to help increase blood flow and alleviate some of the pain, at least temporarily. Electronic heating pads…
You can't always be prepared for an emergency- that is kind of an oxymoron. You can however think ahead and put in place an emergency plan. During a crisis, seconds really count,…
In the fall of 1991, Kathy gave birth to a beautiful baby boy named Isaac. But Kathy and her husband knew something wasn't right. Isaac was their third child. Born…
They say pictures are worth a thousand words. Scroll through these images for a chuckle. Who doesn't love naps? When thinking about how impossible your diagnosis was... Out and about…
When people hear disease, sickness, or chronic illness, 9/10 times they think of weakness. They sadly only look at what they can see, but neglect the heart. Truth is people…
Living with Common Variable Immunodeficiency Disease CVID is challenging enough, but when you factor in medical expenses... Whoah! Check out these upcoming fundraisers and events for super cool kids living with CVID!…
Common Variable Immunodeficiency Disease CVID is a rare disease, affecting 1 in 25,000 to 1 in 50,000 people worldwide. Finding information about the chronic condition can be challenging, especially because…
If all your office chair does is hurt you, maybe it’s time to break up. Sitting for hours can make anyone’s back ache, but for Ankylosing Spondylitis (A.S.) patients making…
Have you ever wondered what it’s like having Common Variable Immunodeficiency Disease (CVID)? This video explores day-to-day life from the point of view of Keith Finch who was diagnosed with…
Psychiatrist Dr. Jennifer Pate, 47, receives life-saving intravenous immunoglobulin infusions every three weeks. This is not by choice, because without them, her immune system is defenseless against potentially lethal infection. Pate…
On June 7, 2015, thousands of people took to the streets across Canada in the annual Walk to End Arthritis. A leading cause of disability, arthritis costs the Canadian economy $33 billion…
It's easy for 20 some year-olds blessed with perfect bodies to easily apply all the insane and cirque du soleil-esque sex positions Cosmopolitan bombards you with in the grocery line. …
We all turn to YouTube here and there; for a good laugh, an informational mini segment on the newest word added to Urban Dictionary, or a clip from the Saturday…
1. Leonard Trask Trask suffered a terrible horse riding incident in his 20s that led to immobility and deformation of his spine. He committed his life to finding a cure…
Pills and Parfaits: How probiotics could make living with CVID a little easier. Between the far-too-frequent infections associated with CVID and the reoccurring gastrointestinal issues, many patients find themselves on…
5 Questions you’re tired of hearing when you have CVID... “So you have respiratory AND digestive issues?” Yes. Both. Trust me I’d pick one if I could. “…
It is through art that Rebecca Zook manages the emotional and physical challenges of living with a chronic condition. After 3 years of seeing dozens of medical specialists, the Texas…
Your average American probably thinks of middle-aged adults or the elderly when they hear the word arthritis. The sad thing is you really can't blame them. Take this commercial from…
In a recent study published by Prime Therapeutics, the company reported that the annual cost of treatment to an HAE patient is over $300,000. We wanted to illustrate the ridiculous…
Ahh the age of machines, yep we're in it. Technology has taken over. A few decades ago, when someone talked about technology, you thought about Orwell's novel 1984, science fiction movies about machines and artificial intelligence…
No, not cinco. "CINCA"! CINCA stands for chronic infantile neurological cutaneous articular syndrome. NOMID stands for Neonatal Onset Multisystem Inflammatory Disease. So is CINCA really the same thing as NOMID?…
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