New Guidebook for Caregivers of Children with Rare Diseases
Patient Worthy was pleased to serve on the advisory committee for the development of this new resource. Caring for a child with a rare disease can be scary and confusing;…
Patient Worthy was pleased to serve on the advisory committee for the development of this new resource. Caring for a child with a rare disease can be scary and confusing;…
A rare disease diagnosis is often shocking, and it means making life changes. An adrenoleukodystrophy (ALD) diagnosis is no exception. Because this condition typically impacts children, parents have to make…
Khevin Barnes is a cancer survivor, as he won his battle with breast cancer. While less than one percent of breast cancer diagnoses are males, it is very important to…
It's no secret to anybody that knows me: I struggle with anxiety, and have for as long as I can remember. I was first medicated for anxiety and depression…
If you're experiencing a difficult time with COVID-19, you're not alone. Many people, including myself, are struggling with managing anxiety, stress, and isolation. Additionally, this time period can feel traumatic,…
Have you been feeling a little stiff or achy later? Maybe tired? I know that my body has undertaken a lot of stress thanks to the new life changes -…