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awareness day

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March 3rd is International TAPS Day 2022
source: pixabay.com

March 3rd is International TAPS Day 2022

  • Post author:James Moore
  • Post published:March 3, 2022
  • Post category:Twin anemia polycythemia sequence

March 3, 2022 is being recognized at International TAPS Day, a time to spread awareness among the general public and the medical field about twin anemia polycythemia sequence (TAPS) a…

Continue Reading March 3rd is International TAPS Day 2022
Do Your Part to Raise Awareness for World Duchenne Muscular Dystrophy Day!

Do Your Part to Raise Awareness for World Duchenne Muscular Dystrophy Day!

  • Post author:Jean Martell
  • Post published:August 31, 2018
  • Post category:Duchenne Muscular Dystrophy/Rare Disease

Friday September 7th is World Duchenne Muscular Dystrophy Day! Duchenne muscular dystrophy (DMD) is one of nine forms of muscular dystrophy.  Patients with DMD cannot make dystrophin in their muscles causing…

Continue Reading Do Your Part to Raise Awareness for World Duchenne Muscular Dystrophy Day!
Show You Care and Be Aware: Bohring-Opitz Syndrome
mcmurryjulie / Pixabay

Show You Care and Be Aware: Bohring-Opitz Syndrome

  • Post author:Jean Martell
  • Post published:April 6, 2018
  • Post category:Bohring-Opitz Syndrome/Rare Disease

Today is Bohring-Opitz Syndrome (BOS) Awareness Day! You'd be forgiven if you haven't heard of this rare disease, which is why awareness days exist! Bohring-Opitz Syndrome is an extremely rare condition…

Continue Reading Show You Care and Be Aware: Bohring-Opitz Syndrome
Learn a Little and Teach a Little: Cushing Awareness Day
Source: Pixabay

Learn a Little and Teach a Little: Cushing Awareness Day

  • Post author:Jean Martell
  • Post published:April 6, 2018
  • Post category:Cushing Disease/Cushing Syndrome/Rare Disease

Sunday, April 8th is Cushing Awareness Day! Cushing syndrome (also known as hypercortisolism, not be confused with its sub-form Cushing disease) is an endocrine disorder characterized by excessive cortisol levels…

Continue Reading Learn a Little and Teach a Little: Cushing Awareness Day
Things You Should Know Ahead of World Leprosy Day

Things You Should Know Ahead of World Leprosy Day

  • Post author:Jean Martell
  • Post published:January 26, 2018
  • Post category:Hansen's disease/Rare Disease

For many - leprosy is nothing but an antiquated disease from biblical times with no present-day relevance. But in fact, nearly 150 to 250 people in the United States and 250,000 around the…

Continue Reading Things You Should Know Ahead of World Leprosy Day
Empower Yourself and Your Baby during National Birth Defect Month
Source: Pixabay

Empower Yourself and Your Baby during National Birth Defect Month

  • Post author:Jean Martell
  • Post published:January 24, 2018
  • Post category:Fetal Alcohol Syndrome/Rare Disease/Spina Bifida

January is National Birth Defects Prevention Month! A birth defect is defined as a problem that happens while a baby is developing in the mother's body. Most birth defects happen during the…

Continue Reading Empower Yourself and Your Baby during National Birth Defect Month

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