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common variable immune deficiency (CVID)

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Vea cómoa un médico experto le cambio la vida a este hombre

Vea cómoa un médico experto le cambio la vida a este hombre

  • Post author:Patient Worthy Contributor
  • Post published:January 5, 2017
  • Post category:CVID/Rare Disease

En esta cuenta, desde Philly.com, el Dr. Thomas Klein, alergólogo e inmunólogo, describe su problema. Un misterio se había encontrado en su camino que no se creía capaz de resolver.…

Continue Reading Vea cómoa un médico experto le cambio la vida a este hombre
Estos hermanos comparten el mismo desorden misterioso, y les esta amenazando la vida

Estos hermanos comparten el mismo desorden misterioso, y les esta amenazando la vida

  • Post author:Patient Worthy Contributor
  • Post published:June 8, 2016
  • Post category:CVID/Rare Disease

Su hermano dijo que el diagnóstico era imposible; Ella no estaba tan segura En febrero de 2006, Sheryl Stein, de Arlington, Virginia, sabía que algo estaba mal. Ella sufría de…

Continue Reading Estos hermanos comparten el mismo desorden misterioso, y les esta amenazando la vida
Is Personalized Treatment for CVID on the Horizon?

Is Personalized Treatment for CVID on the Horizon?

  • Post author:EmpatheticBadass
  • Post published:April 12, 2016
  • Post category:CVID/Primary Immunodeficiencies

Sometimes when we’re feeling low over the fact that there’s no cure for what ails people with combined variable immune deficiency (CVID), it’s hard to remember that doctors and scientists…

Continue Reading Is Personalized Treatment for CVID on the Horizon?
This Woman Found Her Destiny Helping Others In A Surprising Way

This Woman Found Her Destiny Helping Others In A Surprising Way

  • Post author:Winnie Nash
  • Post published:December 29, 2015
  • Post category:CVID/Primary Immunodeficiencies/Rare Disease

Mary Vicencia knows what it’s like to be sick as a dog. For a while, she was basically an expert in feeling downright bad. In fact, she’s a lot like…

Continue Reading This Woman Found Her Destiny Helping Others In A Surprising Way
Unraveling the Mystery of the Lab Report
What does lab work even mean?

Unraveling the Mystery of the Lab Report

  • Post author:Ronald Ledsen
  • Post published:November 20, 2015
  • Post category:CGD/CVID/Primary Immunodeficiencies/Rare Disease/SCID

If you’re a regular PatientWorthy reader, chances are you’ve been on the receiving end of this loaded statement from at least one doctor: “We’re going to need to run some…

Continue Reading Unraveling the Mystery of the Lab Report

See How An Expert Doctor Changed This Man’s Life

  • Post author:Patient Worthy Contributor
  • Post published:October 19, 2015
  • Post category:CVID/Rare Disease

In this account, from Philly.com, Dr. Thomas Klein, allergist and immunologist, describes his problem.  A mystery had come across his path that he didn't think he could solve. He was seeing…

Continue Reading See How An Expert Doctor Changed This Man’s Life
This Bee Inspired Secret Weapon Will Make You Kiss Your Doc

This Bee Inspired Secret Weapon Will Make You Kiss Your Doc

  • Post author:Patient Worthy Contributor
  • Post published:August 27, 2015
  • Post category:CVID/Rare Disease

How much do you hate having to watch your common variable immune deficiency (CVID) child infuse? It’s heart wrenching, not to mention, exhausting dealing with the push back from children who…

Continue Reading This Bee Inspired Secret Weapon Will Make You Kiss Your Doc
Siblings Share Life-Threatening Mystery Disorder- What was it?

Siblings Share Life-Threatening Mystery Disorder- What was it?

  • Post author:Patient Worthy Contributor
  • Post published:June 16, 2015
  • Post category:CVID/Rare Disease

Her Brother Said The Diagnosis Was Impossible; She Wasn't So Sure In February of 2006, Sheryl Stein of Arlington, Virginia, knew something was wrong. She was suffering from nosebleeds and…

Continue Reading Siblings Share Life-Threatening Mystery Disorder- What was it?
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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