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Common Variable Immunodeficiency Disease

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Sobreviviente del ICV deja su vida en manos de extraños

Sobreviviente del ICV deja su vida en manos de extraños

  • Post author:Patient Worthy Contributor
  • Post published:July 1, 2016
  • Post category:CVID/Rare Disease

Vanessa Garrett, una mujer con la enfermedad de Crohn, la inmunodeficiencia variable común (ICV), y Leiomiomatosis Hereditaria y cáncer de células renales (HLRCC), esta agradecida por su vida a pesar…

Continue Reading Sobreviviente del ICV deja su vida en manos de extraños

7 maneras de manejar tu vida con ICV

  • Post author:Patient Worthy Contributor
  • Post published:June 21, 2016
  • Post category:CVID/Rare Disease

Tras la obtención de un diagnóstico de una enfermedad crónica, como ICV o inmunodeficiencia variable común, es fácil sentirse abrumado. Abrumado por preguntas en su cabeza - ¿Qué hago ahora?…

Continue Reading 7 maneras de manejar tu vida con ICV
5 Usuarios de Instagram dignos de pacientes a considerar a seguir con #CVID

5 Usuarios de Instagram dignos de pacientes a considerar a seguir con #CVID

  • Post author:Patient Worthy Contributor
  • Post published:June 3, 2016
  • Post category:CVID/Rare Disease

Viviendo con ICV? Aprendiendo a controlarlo? PatientWorthy te está buscando en Instagram si estás viviendo con inmunodeficiencia variable común, ICV. #PatientWorthy Para compartir sus fotos con nosotros! Y comentar a…

Continue Reading 5 Usuarios de Instagram dignos de pacientes a considerar a seguir con #CVID
12 minutos de inspiración – batallando el ICV

12 minutos de inspiración – batallando el ICV

  • Post author:Patient Worthy Contributor
  • Post published:May 10, 2016
  • Post category:CVID/Rare Disease

Todos nos dirigimos a YouTube aquí y allá; para una buena risa, un pequeño segmento informativo sobre la nueva palabra añadida al Urban Dictionary, o un clip de Saturday Night…

Continue Reading 12 minutos de inspiración – batallando el ICV
Ambas caras de la moneda: El doctor también es el Paciente

Ambas caras de la moneda: El doctor también es el Paciente

  • Post author:Patient Worthy Contributor
  • Post published:May 5, 2016
  • Post category:CVID/Rare Disease

Psiquiatra Dr. Jennifer Pate, de 47 años, recibe infusiones intravenosas de inmunoglobulina que salvan vidas cada tres semanas. Esto no es por elección, porque sin ellos, su sistema inmunológico está…

Continue Reading Ambas caras de la moneda: El doctor también es el Paciente
CVID Survivor Leaves Her Life in the Hands of Strangers

CVID Survivor Leaves Her Life in the Hands of Strangers

  • Post author:Patient Worthy Contributor
  • Post published:July 10, 2015
  • Post category:CVID/Rare Disease

Vanessa Garrett, a woman with Crohn’s disease, common variable immunodeficiency (CVID), and Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC), is grateful for her life despite her circumstances. Her family is…

Continue Reading CVID Survivor Leaves Her Life in the Hands of Strangers

A 7-Layered “How To” on Managing Your Life with CVID

  • Post author:Patient Worthy Contributor
  • Post published:June 17, 2015
  • Post category:CVID/Rare Disease

Upon getting a diagnosis of a chronic illness, like CVID, or Common Variable Immune Deficiency, it's easy to get overwhelmed. Bogged down by questions in your head--What do I do…

Continue Reading A 7-Layered “How To” on Managing Your Life with CVID
5 “Patient Worthy” Instagram Users to check out #CVID

5 “Patient Worthy” Instagram Users to check out #CVID

  • Post author:Patient Worthy Contributor
  • Post published:June 16, 2015
  • Post category:CVID/Rare Disease

Living with CVID? Learning to manage? PatientWorthy is looking for you on Instagram if you are living with Common Variable Immunodeficiency Disease, CVID.  #PatientWorthy to share your photos with us! And…

Continue Reading 5 “Patient Worthy” Instagram Users to check out #CVID
Both Sides of the Story: The Doctor is also The Patient

Both Sides of the Story: The Doctor is also The Patient

  • Post author:Patient Worthy Contributor
  • Post published:June 12, 2015
  • Post category:CVID/Rare Disease

Psychiatrist Dr. Jennifer Pate, 47, receives life-saving intravenous immunoglobulin infusions every three weeks. This is not by choice, because without them, her immune system is defenseless against potentially lethal infection. Pate…

Continue Reading Both Sides of the Story: The Doctor is also The Patient
12 minutes of Inspiration

12 minutes of Inspiration

  • Post author:Patient Worthy Contributor
  • Post published:June 12, 2015
  • Post category:CVID/Rare Disease

We all turn to YouTube here and there; for a good laugh, an informational mini segment on the newest word added to Urban Dictionary, or a clip from the Saturday…

Continue Reading 12 minutes of Inspiration
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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